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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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I’m so sorry to hear everything you’ve had to endure😟. Do you mean you only weigh 80# now?!
Yes, but I'm short. 5' . 80#'s. W/o stomach distended. Now i know i have a torturous colon. It's swollen & hasn't needed to process food. T & W had a piece of salmon & sweet potatoe. Few bites, I'm full. Nauseated. Distended. Tossin cookies. Thurs i
was checking hard to pass poo balls. Yes, gross! Undigested salmon is in it. it's pink w some on outside. Hydration concern cuz pinch skin test on back of hand, drawn skin remains when Dehydrated. Gatorade Zero i learned does have a Sugar out of its 100 names. I wanna ask re G-POEM. Haven't read good reviews. After a year, ppl think they have their life restored, go back to work, & dang if satan isn't done yet? Returns after a year?
@lindamks was you able to go to family reunion?
Tomorrow's GES test. I won't do the wrap my stomach around another organ- really?! I'm concerned their going to find (perhaps) some dead tissue from blockage, actually blockages. 3 pc.'s. w Diarrhea? Yes. I did not know this could happen. Dr didn't send me to hosp. in 2021/22. Diagnosed me w divertic. High Fiber diet. When it wasn't that. Should have been Low Fiber for this kid
@trippster Thanks for the a.m check 😊
I found that reglan calms down flares
Gastropatesis test Negative. & ya know how retrospect goes. I fasted 5 d's cuz didn't want nuthin hindering imaging. & don't think I could bear another 10 wk distension, primarily. Bad timing. Maybe should of went for GES Distended n see what it be like?
Does Anyone know if I may have got a False Negative fasting 5d's prior to GES? I'm thinking retro yesterday, sure I'm gonna digest it ain't nuthin in their to 🛑 it, how it goes so slow go 7th d undigested poo balls n i eat 2-3d's fast
2-3d's. To 🛑 the pain in distension
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1 ReactionI have severe gastroparesis with chronic nausea. I have had it for 12 years. I also have many other GI diseases now. I have been on a feeding tube into my small intestine for 12 year's and will never get off of it. I am pump fed into my feeding tube. I can't eat or put anything in my stomach. But at least I'm not so malnourished as I was. Still under weight but ok. I was good for 6 years and could function pretty well and could fly and see my grandchildren. Now the last 2 years I have gained so many new diseases that are tearing me apart. I am going to Mayo in January to see if they can get my newest disease controlled because my gastroenterologist doesn't have any experience with it. Good luck to you.
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1 ReactionI GI doctor and two neurologist told me gastroparesis is caused by neuropathy. Normally gastroparesis shows up first. Gastroparesis is caused by the nerves not working right slowing digestion down. I would see a neurologist have an EMG/ nerve conduction test and a biopsy for small fiber neuropathy. I have had gastroparesis for over ten years.
Neuropathy affects the nerves which slows down digestion.
Yes fasting five days messes up the test results. You don’t fast for five days. My gastroenterologist said to eat like you regularly do otherwise the test will not read right. Mine did not move and I had to go back the next day. Took two days for that darn stuff to make it out of my stomach.
The family reunion is the week after Christmas. People wanted to have Christmas at home w/ the kids.
At least I lost weight. Went from almost 160 to 120 and holding. Mainly because when my stomach is full, it's FULL.
How did you manage a high-fiber diet when you needed low-fiber. That sounds horrible. I actually had to correct my gastroenterologist. Because of the fundoplication, he recommended a high-fiber diet, but that's a disaster w/ the slow stomach.
I won't say I regret the fundoplication, because my stomach was lying on my lungs and heart and causing real problems.
I just got a tip that maybe fat is my problem?