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Newly diagnosed MDS-IB2 and vidaza

Blood Cancers & Disorders | Last Active: Dec 19 12:28pm | Replies (15)

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@rjperk633

Mom has well controlled hypertension (but recently her meds were doubled). I have read that increased hypertension often accompanies MDS.

Mom is also a well-controlled diabetic.

She’s tough but finicky about the weirdest things… doesn’t mind that she will have many bloodtests thru this progress but is dreading these injections….

She doesn’t like to take oral medications so if she may have to add something oral to fight a side effect of Vidaza, she will quickly want to drop the Vidaza.

She also doesn’t want to lose her hair and her doctor didn’t really address her comment. She has had lots of pre-cancerous skin frozen on her arms and face over the years and as she ages these spots are more noticeable and really pink… hates this as well… Doc did say that her spots will likely be even more pronounced.

So Vidaza basically follows a pattern of taking injections, feel poorly for a while and just as you begin to rebound, it’s time for another round….😬😬

If that’s how it’s gonna be, I don’t see her taking more than one or two rounds… I will support her either way, but my wish is for her to make the choices for herself. I have seen the underneath the bus… lol

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Replies to "Mom has well controlled hypertension (but recently her meds were doubled). I have read that increased..."

Your mom sounds like a force, LOL! I chuckled out loud when you said ‘you’ve seen the underneath of the bus’! I’ve been there with my mom!! 😅

Some people don’t have notable side effects from the Vidaza. But fatigue is usually pretty common with any type of chemo and sometimes nausea. If your mom doesn’t want to take oral medicine there’s a sublingual anti-nausea med called Zofran. It just melts under the tongue and is very small. Not like taking a pill.
It also doesn’t appear that hair loss is a problem for most patients.
Ahh… I don’t know what to tell you. I guess you can encourage her to at least give it a try. But I understand not wanting to be the one to push her into this and then take the heat if her worst fears are realized.

Hopefully you can reach a compromise with her. ☺️ If she has some concerns yet, would she be able to have a with consultation with her oncologist?