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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 days ago | Replies (807)
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@joycehocm

Hi - my doctor just suggested we try verapamil and if not tolerated then go on to Camzyos. Two questions - how well do you tolerate the verapamil? Side effect? Also, I think that verapamil treats only symptoms while Camzyos does do some reduction of the obstruction - perhaps permanentely? Is that your understanding?

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Replies to "Hi - my doctor just suggested we try verapamil and if not tolerated then go on..."
katiekins | @katiekins | Dec 6 11:31pm

Hello there, yes had verapamil for many years and still in 40mgs am and on. After my mini mitral replacement with a small mini myectomy (no scars) but very painful and a long recovery and am in week 14 this coming Monday. Minimally invasive often means more pain as they have to cut under right rib to gain access and under right rib. Verapamil slight constipation and little fluid around the ankles. Camzyos a completely different drug (as you say verapamil treats the symptoms) it apparently stops the hyper activity of the heart therefore thickening and gradient comes down but does have a black box warning. I took it for a week but it just didn’t suit me sadly. That’s my way of describing it, do hope this helps. Good luck. What age are you ish?

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