Just curious: Is your doctor putting you on Pegasus or a JAK inhibitor?

Is he taking all his patients off HU?

There have been studies for many years looking at whether HU causes other cancers (the link to skin cancer is known), but HU has never been clearly established as a carcinogen to my knowledge.

My doc said there may be something about the ET itself or the driver gene that triggers other cancers (besides the progression to acute forms of leukemia, which has already been established and that HU does not address).

Anyway, your post is very worrying to me, but I certainly will be discussing it with my onco. It would be helpful if I could tell her which cancer center your doc is with, but I understand if you don't want to.