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ET: What are acceptable platelet numbers?

Blood Cancers & Disorders | Last Active: Dec 7 4:25pm | Replies (47)

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@janemc

Wow. Thank you for sharing this.

Let's note, you have been on a very high HU dose for a decade.

While an 8-10% chance of cancer in long-term patients is bad, that HU reduces ET fatigue and headaches, and supports our bone marrow, is good.

You are so fortunate to have a top oncologist who took the time to go over this with you!

We must all ask questions to be sure our treatment is best for our individual situation.

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Replies to "Wow. Thank you for sharing this. Let's note, you have been on a very high HU..."

Yes. I have not seen this study, but would really like to, and other Mayo members have asked to see it, so im reaching out to my doctor.