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ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up
Autoimmune Diseases | Last Active: 23 hours ago | Replies (49)Comment receiving replies
So the rheumatologist may be considering Sjogren's?
It takes years for many of us with symptoms, positive (even high) ANA to get a diagnosis. In my experience rheumatologists are mainly watching for internal damage to organs/brain and the rest of our symptoms is for PT and pain management.
I have a diagnosis of lupus and have high antibodies for scleroderma but have been watching and waiting for 25 years. I don't care about labels anymore. I can no longer take Plaquenil (something that might benefit you) and cannot tolerate even low dose steroids, and don't want to take immune suppressants.
The only benefit of a diagnosis is treatment with meds that I and many of my friends hope to avoid. Of course there is also validation involved. But it takes time for the diagnosis to become clear.
Clealry something autoimmune is going on in your body. Treating the dry mouth is a step. For pain I wonder if Plaquenil would help you. Otherwise unfortunately is is often a matter of watching and waiting. Is the rheumatologist seeing you in 6 months or a year?
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@windyshores Please do a food allergy test along with a parasite test . 70 percent of you immune system is in your gut. Gut health can help put all your problems to rest. I hate western medicine because they are so behind on new treatments. Check other countries like Canada and England. Check Japan which is the longest living people in the world. One of the biggest link to this Autoimmune problem is having low Vitamin D. Please talk to your doctor about getting your all your levels up. One of the biggest thing is food so you got to make sure your not eating something that's low key flaming your body. Try to look for a Doctor that does functional medicine because they more worried about fixing all your levels and as a side effects it result in putting your sickness to bed.