@denniscschultz

Greetings and welcome to the Mayo Clinic Connect. There are many blood disorders that are new information for me. I found this link below on the Mayo Clinic website.
Hopefully some members with some experience can chime in.
In general terms, in this time of patient portals and receiving information before we have had an opportunity to talk to our physicians about, it can be unnerving.
I would encourage you to call your physicians office today and ask for an opportunity to discuss this with him or her. As you can see from the information posted below, there are different types of cryoglobulinemia. You will need more information from your physician before anyone can answer questions about their experience definitively. I recommend that you call and ask for an in person appointment or at least a telemedicine call so that you can ask all your questions and they can be answered by your doctor. Start jotting your questions down because your brain may turn to mush when you’re talking to your physician if you’re anything like I am. I make a list and take notes when I get answers to my questions. Ideally, I have someone with me who can prompt me to ask questions I may forget and will remember answers to questions when I have totally blanked out the doctors responses. Your physician, if it’s a general practitioner, may give you a referral to a hematologist for further analysis. Although that seems scary, it’s really a good thing because generally speaking PCPs don’t have a lot of experience with blood disorders.
Try to stay calm and keep your anxiety under control as much as possible. Once you know you have something, even with very little information, it makes you anxious and anxiety is not your friend.
https://www.mayoclinic.org/diseases-conditions/cryoglobulinemia/symptoms-causes/syc-20371244
Will you let me know what your doctor says about this and if you are successful in getting more information?

@denniscschultz, I'm adding my welcome. I moved your questions about cryoglobulinemia, what it is like, what treatments are available and potential side effects, etc. to this existing discussion:
- Cryoglobulinemia: Want to connect https://connect.mayoclinic.org/discussion/cryoglobenemia/

I did this so you can read previous posts and connect with other members like @zebra2022 @marinella @pepin31219 @modens @slward1951 who have experience with cryoglobulinemia. As you know this blood condition may cause atypical proteins in the blood to clump together at body temperatures below 98.6 F (37 C). Treatments will vary with the underlying cause of the condition.

Dennis, is this a new diagnosis for you? What treatment is being suggested?