Hi, @bumble81 ! Your post just came across thru my email, and it’s interesting. I, too, have lesions on my brain that they thought could be MS except I’m too old. I went to a neuroimmunologist at the university Med center. From an MRI they diagnosed a rare autoimmune disease called CLIPPERS. THe treatment is high dose steroids. I’m better now but not where I want to be. Have you seen a specialist beyond the neurologist? I have some journal articles that I will see if I can get onto this site. Keep advocating for yourself! Go wherever you need to go! Will you get back to us when you find something out?
BYW, CLIPPERS stands for chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids. I now get rituxan twice a year and I’m trying to taper off the prednisone. Hope you can find out soon