← Return to Multiple Sclerosis (MS) - please introduce yourself

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@legalese1972

Has anyone here had symptoms for years but no lesions? Last year I lost the use of my legs but went thru rehab and I am walking again. I still have many issues, extreme fatigue, dizziness, blurred vision, stability, headaches that I never used to get before, pins and needles, numbness, and spasms and urinary incontinence to name a few and I'm 46. All of my MRIs keep coming back normal. I know this is not in my head. My mother had MS and so I'm extremely familiar with the symptoms and everything I've been experiencing the last 2 years is deja vu of my mother's condition. Before 2 years ago, I was extremely active, running, social, and had a life. Now my life is just trying to survive through the day at work to pay bills. How long did you have symptoms before lesions appeared? Doctors have given me a diagnosis of Central Sensitization and Fibromyalgia which I'm not convinced of as all of my symptoms point to MS but lack the lesions. *sigh*

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Replies to "Has anyone here had symptoms for years but no lesions? Last year I lost the use..."

Hi, @legalese1972 - Hoping some of the other members here will have some thoughts for you on experiencing symptoms for years you recognize from your mother's MS but no lesions and normal MRIs. @bumble81 and @srountree3006 may have some insights from being in the process of getting a diagnosis, and @vivib mentioned having a diagnosis of MS without any lesions. @babette and @brightwings may also have some input for you.

One other thought is you might post in this Connect discussion on fibromyalgia to see if any of the members there have any thoughts on your fibromyalgia diagnosis you mentioned you are not convinced of https://connect.mayoclinic.org/discussion/fibromyalgia-5/.

Have you considered or already pursued an opinion from another neurologist specializing in MS, @legalese1972?

There is a condition that is almost identical to MS but I don't think it causes any lesions. It's called Chronic inflammatory demyelinating polyneuropathy. I'm not saying you have that but it might be something to consider.