I do understand what you are saying, @jaybee51. When I started carbidopa/levodopa, I too had an immediate improvement in my gait. I no longer had the stumbling *drop foot" and my balance was definitely better. I told my neurologist that my brain and lower extremities seemed better connected. Is this the way you feel as well?
I'm not sure of the cause of the rash/hives. This is time to contact your doctor's office (by a phone call). There are other meds that can treat PD.
I would encourage you to learn as much as you can about PD through research from reliable websites. The Davis Phinney Foundation has great information as well as videos that might fill up the gaps in your understanding of PD. Here is a link to their website, https://davisphinneyfoundation.org/. Under the "Resources" tab you will find a listing of medications.
Here is a link with a listing of all the Mayo Connect discussions on PD. https://connect.mayoclinic.org/group/parkinsons-disease/
I would encourage you to read through the titles and look at any discussions that might offer you more information about medications.
I look forward to hearing from you again as you search for help.
Thanks Teresa, I can’t believe your description of your gait: it’s almost word for word how I described my gait “my brain doesn’t seem to be connected to my legs”. I told this to 3 different doctors and even suggested possible Parkinson’s and not one made the connection (even though I noted several other non-moter symptoms.
Anyway, after taking Carbodoba/levadopa, my brain seems to be connected to my legs again.
I am now officially enrolled in a Virtual group meeting that starts in January.
My worst problem now is back pain and I have an appointment with my pain specialist tomorrow. Am curious as to how much if any of the pain might be caused by PD. Do you have any thoughts or experience with back pain in PD patients?
Thanks for the additional information sources. I’ll check them out. Jim