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Bone marrow (stem cell) transplant support thread

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Dec 5, 2024 | Replies (29)
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@loribmt

Hi @sennep, I just wanted to followup with you to see how you’re doing. Did you have your BMBX Oct 28th?
You mentioned having the FLT3 mutation, which can be a real bugaboo in the treatment of AML. I had 3 mutations, including the FLT3.
There is a targeted med for FLT3 that I had to take for the 3 weeks between the cytarabine/idarubicine cycles. Has your doctor suggested midostaurin (RYDAPT ?

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Replies to "Hi @sennep, I just wanted to followup with you to see how you’re doing. Did you..."
sennep | @sennep | Dec 5, 2024

@loribmt
Lori
Thank you for following up with me! I have been telling my story on caringbridge.org (Graham Sullivan, my site shows a pic of my family). I was scheduled to enter the hospital on Nov 8 but got a phone call from my hematologist saying NYU Langone and MSK disagreed on my diagnosis. My biopsies finally got sent to the NIH last week for review. So I have been limbo but making the best of it with some travel. I feel fine and my bloodwork suggests the chemo has been working to eliminate my myeloblasts. My specific FLT3 mutation is considered benign “Tier 3” fortunately (details below). I have no other mutations identified even after an extensive genetic test by MSK. Hopefully we will hear from the NIH next week. 🤞
Best
Graham

Gene
Variant
Tier
Variant Type
VAF(%)
Depth
Transcript
FLT3
c.970G>A, p.D324N
3
SNV
47.83
1982
NM

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