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Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: Jan 8 3:02pm | Replies (104)
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@eileen11108

Are you taking a high dose of HU four days a week? I have never taken more than one 500 mg tablet, now at four days a week. My last lab was 515. That is great getting to 192 and I hope it stabilizes at that for you. LabCorp says 150-450 is normal.
Congrats! Eileen

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Replies to "Are you taking a high dose of HU four days a week? I have never taken..."
lindamarie63 | @lindamarie63 | Jan 8 11:56am

I take 500 mg 2 times a day . My platelet count was 1100, its now down to the 700s

I get really bad headaches. Is this a side effect

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