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Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: 5 days ago | Replies (211)
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Profile picture for eileen11108 @eileen11108

Are you taking a high dose of HU four days a week? I have never taken more than one 500 mg tablet, now at four days a week. My last lab was 515. That is great getting to 192 and I hope it stabilizes at that for you. LabCorp says 150-450 is normal.
Congrats! Eileen

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Replies to "Are you taking a high dose of HU four days a week? I have never taken..."
lindamarie63 | @lindamarie63 | Jan 8 11:56am

I take 500 mg 2 times a day . My platelet count was 1100, its now down to the 700s

I get really bad headaches. Is this a side effect

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debhammel | @debhammel | Oct 26 7:23am

@eileen11108 Yes, I take 1000 mg a day - a 500 mg capsule twice a day, Monday through Thursday, with only very minor side effects.

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