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Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: 7 hours ago | Replies (8)
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@debhammel

I was diagnosed with this mutation and ET last Fall, and started Hydroxyurea as my platelet count was in the mid 700s and climbing. I have stabilized with platelets hanging right at 192 for the last six months and take HU only 4 days a week. I consider this a win!

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Replies to "I was diagnosed with this mutation and ET last Fall, and started Hydroxyurea as my platelet..."
eileen11108 | @eileen11108 | Dec 5 7:26am

Are you taking a high dose of HU four days a week? I have never taken more than one 500 mg tablet, now at four days a week. My last lab was 515. That is great getting to 192 and I hope it stabilizes at that for you. LabCorp says 150-450 is normal.
Congrats! Eileen

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