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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (576)Comment receiving replies
Hello, lindamarie! Others on this forum have been living with ET with the JAK2 driver for decades.
Diagnosis is SCARY! Especially since this is something you (and maybe even your doctor) had never heard of.
But we are lucky that we have effective treatment options. The JAK2 driver is the most frequent and the most studied form of ET.
We are lucky to have this forum, too. This is a great place to ask questions and benefit from others' experiences.
We're here for you!
Replies to "Hello, lindamarie! Others on this forum have been living with ET with the JAK2 driver for..."
@janemc Iowa found out in 2017 it sucks
@janemc
This is great, I'm so glad I found you. It did two things for me,
one: started taking the sun thing a bit more seriously (though I still have a glass of red wine everyday) and
two: I no longer feel alone with the HU and/or ETJAC2. When I start to describe it to my friends their eyes glaze-over. 🙂
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Does anyone get severe headaches? Im trying to decide if i should see a neurologist or just chalk it up to this disorder