Antiphospholipid syndrome with Addisons disease

Posted by Marcy @mkempson42, Dec 4, 2024

Hi I was wondering if anyone with Antiphospholipid syndrome also has Addisons disease, vitiligo, and dermatitis herpetiformis. If I'm correct in my findings with supporting evidence I have all of these autoimmune diseases/disorders. And at this time both of my lower legs are swollen, red , and hot to touch.... superficial thrombophlebitis possible dvt...

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@mkempson42 You certainly have a lot of diseases to cope with right now. How are you doing with them? Are rheumatologists managing your care? Have you had your lower legs checked out and treated? And how do you keep all the diseases straight?
Is there 1 specific question you would like answered? Besides your question of asking if anyone else has this same group of diseases

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Hello, this is my first time posting on here, I'm already diagnosed with "secondary" adrenal insufficiency, although some of my charts say primary/Addison's. I haven't had much luck with doctors in my area. My test for APS was negative, but it was the first thing I was tested for when I finally got into the rheumatologist. @mkempson42 you sound basically just like me! Do your legs hurt as well? especially your knees? My knees are the worst, the back of them both feel really tight. I cannot stand for more than 10-15 minutes due to pain, and they start to swell. These were symptoms I never had before, and they started in April. Then about two months ago the redness and hotness started. I also developed livedo reticularis and other skin conditions when this happened, and it's been constant, to this day. I have seen about 18 different doctors since April, and tested negative for all Rheumatological conditions. Not a single one of them seem concerned I am in constant pain, or can't stand. Have you seen a Phlebologist? That may help ease your mind of DVT. That's what I did while waiting to get into the Rheum.

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