Dealing with multiple GI issues

Posted by oliveoyl123 @oliveoyl123, Feb 7, 2024

I have been adding new diagnoses to my already numerous this past six months. My former gi dr just thru meds at me mostly. So about 11 years ago I got diagnosed with redundant colon and IBS-c (which sometimes I think is a catch-all for who knows what's wrong with you LOL) when I started following the low FODMAP diet loosely (onions and garlic are out for sure.) Two years later I had severe lower chest pain and went to ER, where I eventually diagnosed with EOE, gastritis, hiatal hernia. Put on prilosec then and still on them, top dose now. Had my colonoscopy 9 years after the first as I was having issues again and got sent to specialist colon dr as I have flat large precanerous polyps that took 3 more colonoscopies (4 in 20 months), and the last two were two day preps with two gallons prep that I could only get 1 1/4 down both times. On a yearly schedule now, sigh. I was having issues with swallowing again this past June and had another endoscopy where gi dr broke a Schatzki ring at the bottom, and showed an erosive esophagus, no EOE. I also saw a couple of ENTs shortly after as I was having vocal cord issues (from long Covid in the spring), and turns out I have LPR, and acid reflux is hitting my vocal cords. I switched to a larger practice who did three tests - ph impendence (119 weakly acidic events in 24 hours, some up to my vocal cords, on meds), esophageal motility which showed gastroparesis, and manometry which showed inefficient esophageal motility. I was too complex for them so I am being referred to a university center. I also met with a dietician who helped me figure out how to deal with these conflicting diagnoses! I am eating very little solids, granola in am (to keep me not constipated but gives me heart burn) midmorning a homemade muffin or similar, soup which I just stopped pureeing for lunch, Owyn protein drink for mid afternoon, and a smoothie for dinner. Avoiding as much acid foods and drinks as possible, only drinking alkaline water. Just wondering if anyone else has similar multiple issues. And what anyone has found that works! I am on a new med for the motility issue, bethanechol which hasn't helped much yet (bloating still bad.) And I have lost almost 30 pounds in 4 months, needed to but not sure when it will stop.

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Profile picture for shawnkthryn @shawnkthryn

Yes LFT is fine. I'm w you, I hear you. Taking years of this 23 y's to be exact. I'm sorry youre going through this too 🙁

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I’ve had all the tests , did that one Gastric emptying study 6-7 years ago .
Many endoscopy’s and colonoscopy’s through the years . Last one Mar 2024 w/ biopsies.
I’ve even been to Mayo Clinic Jax for some tests that n 2021 .
All same diagnosis,
Gastritis , Esphogitis , GERD , small hiatal hernia , diverticulosis all over colon , small benign polyps on stomach lining ( flat ), IBS -alternating, 1000’s deep wet belches and non stop churning gut , nausea at times and throw up at times , chronic fatigue, Fatigue , PVCs , or high to low heart rate daily , barely eat anything.
It’s def ruined my life 11 years and getting worse.
I have CScan tomorrow Again .
Nothing and no one can help me .
I even talk to a therapist now and then . Done whole holistic approach too .
I sure hope they find out why your belly is so distended!!!
Keep me posted ok ✅?
God Bless … 🙏.

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Profile picture for rozy288 @rozy288

I’ve had all the tests , did that one Gastric emptying study 6-7 years ago .
Many endoscopy’s and colonoscopy’s through the years . Last one Mar 2024 w/ biopsies.
I’ve even been to Mayo Clinic Jax for some tests that n 2021 .
All same diagnosis,
Gastritis , Esphogitis , GERD , small hiatal hernia , diverticulosis all over colon , small benign polyps on stomach lining ( flat ), IBS -alternating, 1000’s deep wet belches and non stop churning gut , nausea at times and throw up at times , chronic fatigue, Fatigue , PVCs , or high to low heart rate daily , barely eat anything.
It’s def ruined my life 11 years and getting worse.
I have CScan tomorrow Again .
Nothing and no one can help me .
I even talk to a therapist now and then . Done whole holistic approach too .
I sure hope they find out why your belly is so distended!!!
Keep me posted ok ✅?
God Bless … 🙏.

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Thank you & you be blessed as well. Medical answers is like extracting a tooth. Or same as mental illness there's 100's diagnosed & misdiagnosed & given this n that & we'll land on one that works for you. Diets. Exhausted tests. I do need maternity tops, no joke. At least when we're pregnant, get uncomfortable, but you know relief is coming. This is repetitive. Years. Not slamming any communities. Drs are more advanced in transitioning & all edu for that & here We are sitting, wishing, hoping, praying the next test has to be the solution.

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Profile picture for shawnkthryn @shawnkthryn

Thank you & you be blessed as well. Medical answers is like extracting a tooth. Or same as mental illness there's 100's diagnosed & misdiagnosed & given this n that & we'll land on one that works for you. Diets. Exhausted tests. I do need maternity tops, no joke. At least when we're pregnant, get uncomfortable, but you know relief is coming. This is repetitive. Years. Not slamming any communities. Drs are more advanced in transitioning & all edu for that & here We are sitting, wishing, hoping, praying the next test has to be the solution.

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So true .
If they could only live a day if our lives .

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Profile picture for rozy288 @rozy288

So true .
If they could only live a day if our lives .

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But they don't. They live in fancy homes, fine cars, & eat the best. But I have to suggest time for dietician. I'd like a gastric emptying test. Oh thats gonna be the ticket. That's coming this Monday. Hit my chart by Tues or W. I think I ought to start checking credentials are they pro or quacked

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Profile picture for cheyne @cheyne

Hi,
I really don't know why I haven't pulled the plug by now. Something keeps me searching for hope that some help will turn up. Until ANS starts with the word cancer little will be done. All my life I have been a fighter and don't give in easily, but I have to recognise there is no hope at all and sooner or later the plug will be pulled before I can no longer take care of it. I have always worked with my hands on delicate work and find it almost intolerable to be loosing my hand eye coordination. I can put up with most things and deal with physical pain hourly without meds, by choice, but not having the hand eye coordination really bothers me. I get to feel useless at times when I need the dexterity. At 73 and a lifetime of decisive decision making is now fading to indecisions and desperation, a place I don't want to be.
It is funny how keeping busy blocks the problems from the mind and masks the symptoms until I settle down for some rest, only to have the consequences of being busy grab the opportunity to kick me when I'm down. Then the pain surges through the hands and legs leaving me uncomfortable and unwilling to delve into my bottle of opioid based medication I keep tucked away for the really bad times.
I always thought rest and relaxation was a solution for the body to recover, not the opportunity for ANS and everything else going on to gang up on me and have a picnic at my expense!
Cheers

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@cheyne you're the Cheers kid on the block 😊 .I wish you well, Wellness.

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Profile picture for shawnkthryn @shawnkthryn

Protonix/ Pantraprazole for acid reflux, Rx. Pepcid complete otc. There's 100 names for sugar. Tuna fish & noodles, broiled or baked fish, how many bland ways to make a chicken or turkey breast. Gobble-gobble. What do we eat this holiday season. No grease tolerance. Chokes me out of kitchen, tears rollin. I'm not digesting poultry or fish if I eat 2 or most 3 days, I'm concentrating on walking, exercise. Followed w breakin out maternity tops for 10 month distensions. Uncomfortable, painful. Artichoke 8000 1st day was success. 1 cap Broke C to D. Next day 1 cap sent me to bthrm for vomiting. I know it's a new intro to my body. Trying 1 cap today to break z dam. My Chart has redundant colon. GI said I have a torturous redundant colon. They seem to know the names, labels, tests, procedures, check dignity at the door. I just had anal prolapse repaired n doc said its from stomach distensions, bearing weight, pressing down. Now, I sit cuz im afraid my rectum will fall out again w/o resolve for root cause. I'm happy I found somewhere to share & trade whatever knowledge we gain. May inadverntly help another. Look at chronic pain & many factors create candidates who are willing to try this, try that. Do they not know we're desperate here. Growing weaker as the glimmer of hope stays barely lit. URQ pain feels puched, then two days to recover from the spasm. I stopped everything I was told to do. To many drs, not enough answers. & Go to Dr well prepared. Research. @GI i requested Gastric Emptying stomach 4 hour test. GI said that's a good idea. I imagine my food is not digested & rotting in my gut. Test this Monday GES. klonopin can cause C. Choice; take a klonopin to calm down our anxiety & ambien for sleep here too.

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Does anybody w Redundant Torturous colon get distended like this? I prolapsed anal 7/4 & let freedom ring. Rectopexy surgery. PCP follow up & dr offers tetanus shot. Same dr who put me on Colesevlam 625mg 3x day w Dicyclomine 2x day. From Dumping syndrome for 4 y's to C. 12/2023. I had an appt. Told doc I've 🛑 3 days. Stop if you get rx for this at 2-3 d's w/o bm. No he did not tell me that. Been in since. Going 1x every 7-10 d's. GES stomach is emptying fine. W swollen intestines & yes to crackers, applesauce, boost, gatorade, squash. All soft food w/o fish or chicken to digest, let's see how this works. w prenatal vitamin, super B & vitamin D Artichoke root 8000mg. for digestion & 4-8mg ondansetron for
nausea. God help us. There's a place to come clean

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Profile picture for rozy288 @rozy288

Oh my , have you had liver checked ? Liver disease can cause distended abdomen like that !
I’ll pray for you . How horrible.
I’m a mess as well , so chronic. Plus slept 10 hrs in last 5 nights .
I have 7 diagnoses no one can help me .
Now I’m losing it not sleeping 💤.

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@rozy288 last thing to go for us I'm told is our mind. & the last thing that went through the fly hitting the windshield was its ass. that's a joke dearheart. My LFT liver enzymes in my blood work look fine. For 4 months i got up every a.m to look for yellow of skin pee Coca-Cola n poop white. But I didn't. I've been spared bad liver & diabetic gastropresis but I'll take anyone's advice re natural home remedies. If you like black licorice use 2 Stash black licorice tea bags & relax. No tvs or phones on b4 bed. We need rest to have better tomorrow

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Profile picture for shawnkthryn @shawnkthryn

@rozy288 last thing to go for us I'm told is our mind. & the last thing that went through the fly hitting the windshield was its ass. that's a joke dearheart. My LFT liver enzymes in my blood work look fine. For 4 months i got up every a.m to look for yellow of skin pee Coca-Cola n poop white. But I didn't. I've been spared bad liver & diabetic gastropresis but I'll take anyone's advice re natural home remedies. If you like black licorice use 2 Stash black licorice tea bags & relax. No tvs or phones on b4 bed. We need rest to have better tomorrow

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Home remedies re Redundant long torturous colon. GES tested Negative. Asked did I set myself up for false negative? Because I fasted W- Mondays test appt. Occurred to me the day after test. Called Neuclear med imaging & they said to end the insanity they called X-ray & both said No. I think it did in retrospect. If I went in there w stomach distension huge & swollen intestines the Food would not have any where To go & wouldn't digest Fast. Now I'm restricted from textures. I've enjoyed textures in food. But I'll savor mush & feel blessed. There's so many debilitating diseases, syndromes, & just when I think I'm on the right path, I'm not, but I know the One who is. Cheers, Cheers

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Profile picture for shawnkthryn @shawnkthryn

But they don't. They live in fancy homes, fine cars, & eat the best. But I have to suggest time for dietician. I'd like a gastric emptying test. Oh thats gonna be the ticket. That's coming this Monday. Hit my chart by Tues or W. I think I ought to start checking credentials are they pro or quacked

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Hi,
Strangely enough I used to have the house, cars etc and discovered I didn't need any of it. Still have a new car but something plainish that does what I need of it. I actually built my mansion believing it was what we wanted. Trouble was we needed a road map to find our way around it! Finally the penny dropped average houses can be fine, they keep the rain and wind out just as good and less maintenance is required.
After years of the insinuation that my problems are psychological in nature and almost believing the "doctors" the proof is in from a MRI scan. There are physical reasons for my health issues. You can bet there are going to be some red faces when I see my so called doctors net week. I may do some crazy things but I'm not crazy thank God.
Contemplation of what to do with the big switch is again on my mind. If I can't get the medical help I want and kind of expect, then will I stop and reject all medication to help nature to take its course. I guess if I decide to use the big switch then I'm kind of proving the case that I'm nuts to them anyway! Murphy's law.
Cheers

REPLY
Profile picture for cheyne @cheyne

Hi,
Strangely enough I used to have the house, cars etc and discovered I didn't need any of it. Still have a new car but something plainish that does what I need of it. I actually built my mansion believing it was what we wanted. Trouble was we needed a road map to find our way around it! Finally the penny dropped average houses can be fine, they keep the rain and wind out just as good and less maintenance is required.
After years of the insinuation that my problems are psychological in nature and almost believing the "doctors" the proof is in from a MRI scan. There are physical reasons for my health issues. You can bet there are going to be some red faces when I see my so called doctors net week. I may do some crazy things but I'm not crazy thank God.
Contemplation of what to do with the big switch is again on my mind. If I can't get the medical help I want and kind of expect, then will I stop and reject all medication to help nature to take its course. I guess if I decide to use the big switch then I'm kind of proving the case that I'm nuts to them anyway! Murphy's law.
Cheers

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Righteo. My husband sees me distended & says you can't drink a bottle of water on an empty stomach w/o blowing out. You can't make this s☆☆☆ up in your head! I ask for a .05mg klonopin & cut that in 1/2 & doctors do not want to give any comfort. While we're eating, walking, drinking properly or when bowels 🛑 from aggressive action taken on drs part & then not telling me the pt to 🛑 taking the med, the tables turn. Who is what. & has botox signs all over his office. Great! That's what I'm in, a plastic office. I go in to have my prolapse checked & he offers a tetanus shot. Really. Whose got screws loose

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