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Anyone have granulomatosis with polyangiitis (GPA) or Wegener's?
Autoimmune Diseases | Last Active: Mar 18, 2022 | Replies (60)Comment receiving replies
Anyone out there dealing with granulamatosis polyangiitis with vasculitis? With organ involvement?
Replies to "Anyone out there dealing with granulamatosis polyangiitis with vasculitis? With organ involvement?"
Hello, Sheims 022.
I have GPA and my Heart and Kidneys are the organs involved, altho I have a healthy heart and a healthy lungs,
its the veins leading to the heart and lungs that that are damaged due to vasculitis, I also have chronic Kidney disease due to the Vasculitis and drink quite a bit of water every day, at first I started drinking about 60 oz of liquid a day and now I drink about 32 oz a day. I am starting my 11th year with GPA and in remission. I wish there were more Rheumontologist out there, right now my Primary doctor is watching over me.
I can answer any questions you ask, I take two "preventive" heart pills and take no medication for my kidneys and none for my lungs, when I was first diagnosis I took Prednisone. Write using the words ''GPA'' MFB
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Hi, my rheumatologist suspects that I now have GPA and my heart and kidneys are the organs involved.
I'm expecting a call tomorrow from another rheumatologist that specializes in GPA, and will be undergoing a biopsy soon to confirm dx.