I understand how you feel. I can't sit long I can't sleep long I can't find positions to get into. It hurts but I've had it si long I'm grateful for days I'm able to go out somewhere or just do laundry or cook. I wish Dr's would understand we aren't drug seeking we are just trying to live w a quality of life WE have to live with. I'm grateful to have a home a roof over my head running water and a dog I adore. She has learned to move with me as I go thru my home in case I fall or get off balance she is my light. I wish I could be outside with her more. It's cold here in winter though. If you need to talk I've had this so long w no diagnosis that I even thought I was crazy. My family didn't know I had stopped drinking years ago when they knew I was still stumbling falling now on a walker. I will answer anything I can but I'm trying to find a specialist to help me. If anyone knows of a Dr that specializes in this Arachnoiditis please share information bc everyone would love and be blessed by answers to help us deal w this terrible burden but know and be grateful for good things.