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Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: Jan 11 12:18am | Replies (30)

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@rustypenny

Thank you for your answer, I do feel quite anxious. I have always been a healthy person and basically had very little interaction with the medical profession, pretty much nothing more than check ups and vaccinations, never even had surgery. I am waiting to hear back from my doctor about the referral to a hematologist but it seems like more often than not one sees a nurse a few times before a doctor. I will keep on this

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Replies to "Thank you for your answer, I do feel quite anxious. I have always been a healthy..."

The thing is, this is a complex thing and if your IGG is already showing a significant increase, and your nurse is urging you to get a bone biopsy maybe you should. If your doctor says it isn’t MM and you are in watch and wait mode, then you can relax because not everyone who has MGUS gets MM. If it turns out that you are catching it early and it is MM, this is also good, because you can start treating and knock it back before you end up like many who get diagnosed like my husband, with a broken back and holes in every bone. He was like you always super healthy until he had a back ache that wouldn’t go away.
Either way, my humble opinion is that a biopsy is a minimally invasive win-win. Is there any reason why you would not want to get a biopsy?

I think being very healthy and this hitting your makes it harder to deal with. I've had MGUS for 8 years (70) and I bike 3000-7000 miles most years, including tough bike tours. You can continue being healthy after MGUS, but emotionally it will be there. It sucks, but anyone can be hit with "unknown significance" that likely won't morph into MM based on the 1% chance/year. For some, it is a call to focus on what we have, on destressing, diet, and fun. There is a grieving process with MGUS so it is good to find people you can talk with.