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@jaybee51

Thank you very much for your response and your helpful advice. I will explore all of your links and suggestions. Since my last post, I did find a connection to some in person and virtual support groups thru the APDA NW. They were very helpful but I only made that connection yesterday so haven’t had a chance to use anything yet.
Unfortunately, my neurologist is as unhelpful as possible: handed me a note that said she was diagnosing me with PD and offered no explanation or information: not even a booklet or source of info. Only a prescription and a follow up appointment in 6 months. She even sent the prescription to the wrong pharmacy and the mixup caused a 30 day delay in getting it. I only started it 3 days ago and it is really helping already. I had a bad classic Parkinson’s slow shuffle and I have my normal gait back! Only problem is I’m having serious rashes and hives and I fear that they might take me off of it as a result. This is happening with only 1/2 of a 25/100 dose of C/D taken 3X daily. Has anyone else had this reaction to Carbodoba/Levidopa and if so, did it subside or go away or did you have to stop it? I’m probably getting ahead of myself, but if I’m forced to go off it, are there good alternatives to Carbodoba/Levidopa? I’m feeling very encouraged to get such an early and positive response to the meds. I don’t think it’s just a placebo effect because I would not have thought that fast of a response was possible.
Thanks again for your response and I will definitely post updates. Jim

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Replies to "Thank you very much for your response and your helpful advice. I will explore all of..."

I do understand what you are saying, @jaybee51. When I started carbidopa/levodopa, I too had an immediate improvement in my gait. I no longer had the stumbling *drop foot" and my balance was definitely better. I told my neurologist that my brain and lower extremities seemed better connected. Is this the way you feel as well?

I'm not sure of the cause of the rash/hives. This is time to contact your doctor's office (by a phone call). There are other meds that can treat PD.

I would encourage you to learn as much as you can about PD through research from reliable websites. The Davis Phinney Foundation has great information as well as videos that might fill up the gaps in your understanding of PD. Here is a link to their website, https://davisphinneyfoundation.org/. Under the "Resources" tab you will find a listing of medications.

Here is a link with a listing of all the Mayo Connect discussions on PD. https://connect.mayoclinic.org/group/parkinsons-disease/

I would encourage you to read through the titles and look at any discussions that might offer you more information about medications.

I look forward to hearing from you again as you search for help.