Good morning, jabrown. While my psychological symptoms weren't as bad as yours, I definitely experienced and continue to experience some. When I was first diagnosed, I discovered this support group and started reading the various things that can happen to a PMR patient. Some of them were so horrifying that it increased my anxiety and made me start feeling very depressed. I recall that three days after my diagnosis I had learned so many negative things, that I spent most of the day crying. But I soon began educating myself on ways to minimize my chances of becoming diabetic and having my osteoporosis worsening. Fortunately I have always been slim and fairly fit. I gave up most sugar (not all; I still need that bit of sweetness now and then), refined white flour, pre-packaged foods with preservatives, etc. I increased my protein, and even bought max protein Ensure, which has a slight sweetness that satisfies my sweet tooth for a dessert after dinner. I also found a YouTube that featured exercises especially for PMR patients. Once I viewed the YouTube, I realized I was already much more advanced than the exercises she was showing. My doctor had told me years ago to carry weights around to build my bone density. So I started a 20-minute "weighted walk" routine, which I try to do every day. I hold 5-pound weights in each hand and strap 1.5 pound weights to each ankle. After a couple of months, I increased the ankle weights to 3 pounds each. I also do push-ups against my kitchen counter, and jog in place for 100 steps at a time. These are all exercises that build bone density. Another thing for me is prayer. I am an unashamed Christian, and I have so many times experienced what I believe to be miracles, that I have a strong faith. Of course I question God also, i.e. "Why me, God? " But I believe He wants to make me stronger through adversity. So far I have not experienced any swelling, except a very slight puffiness in my cheeks, but definitely not "moonface." I have noticed an increased tendency to bruise, but my dermatologist recommended Arnicare, which is a cream that if applied right after a bump on the arm or leg, will prevent the bruise from appearing. My PC doc gave me some mild sleeping pills that help with the sleeplessness caused by prednisone. But overall, I believe I am doing better than most. I had recent labs, and they were all good. I just hope I can continue tapering my prednisone without any pain. Another psychological effect that still lingers, seems to be a lack of desire to participate in some of the organizations I formerly engaged in. I'm not sure why, but I still feel a bit stand-offish that way and find myself shutting people out sometimes. I finally found one acquaintance who had experienced PMR several years ago, so she and I were able to talk about it. Most of my friends have zero idea of the initial pain. I sincerely wish you the best. By the way, I am a 77-year old female.
Thank you for your comments. One of the many challenges with PMR is that everyone's journey is so different. Literally, no two are alike. It has been difficult for me to set expectations for myself. As badly as I would like to be as I was before PMR, I intellectually I know that may never happen. I would just like to know when I have reached peak recovery. My body was good to me for many, many years and I am trying to live with the hand I was delt, unfortunately from my perspective there is not a PMR for Dummies. I find myself somewhat where you are, no one has even heard of it, people want to move past it and we are stuck in the middle of finding our way out. I applaud anyone and everyone who can say they have achieved optimal quality of life post PMR. I think PMR changes our perspective and values in ways we don't recognize immediately. I would not have chosen this journey. Now that I find myself on it, I find it challenging and rewarding, depressing and exhilarating all at once. I too am female and a mere 80 years old.