Sabra dermatitis

Posted by buddybuddy @buddybuddy, Jul 18, 2021

Sabra dermatitis is a occupational dermatitis that the workers who pick the prickly pear are known to have . I live in phoenix arizona and the prickly pear are native and can be found everywhere. These things are covered with glochids that are very hard to see because they are small like peach fuzz, translucent to a very light yellow in color , sharp as razor blades with barbs like fish hooks that break off at the slightest touch and can become wind born . The workers are not allowed to pick the fruit if the wind is blowing and have to be wetted down even when it isn't. I here in phoenix have gotten into the glochids. First pain was in my foot and after having multiple spinal surgeries can not spend the day with foot in face. I went to the emergency room 2 years ago and was escorted out by security after being told I had nothing in my foot and not treated very nice by the staff. I tried for weeks to believe them the thing is I continued covering myself in these things. You can pass them person to person or your pet gets in them your pet can give them to you. I kept wearing the shoes. I can not tell you how long I did this . I was diagnosed as a skin picker . Last November after 6 months of ear infections caused by the glochids I went back for help and never got an examination. This past April I got the first of 2 referrals to remove the cactus needles and debris from deep in the cartilage of my ears but the skin picking disorder has taken a toll and I have not found a place to use my referrals. I sit here now with double ear infections , I wish that is the only place I have these. I have scars on my genitals, on my nose and they are in my tongue and when I have an outbreak my heartburn can not be stopped . I call it an outbreak they never really go away ,sometimes it is worse than others. 2 years of begging for help and that alone has beaten me down. In the past few years medical papers have been written on the subject and it says most dermatologist have never heard of sabra dermatitis or what a glochid even is. It also says if someone just shows up withs similar dermatological issues in an area that the prickly pear cactus grows ,sabra dermatitis should be considered as the culprit. I think every doctor in the southwest especially arizona should be familiar with local plants and the dangers they can pose but I assure you as 99% of the doctors here are not from here they are clueless on the subject. Glochids are tiny barb like slivers that pose more risk than other part of a cactus.. only certain types of Cactus have glochids . I still have them in my foot and the scars hurt but I truly think the ones I have injested will be what gets me . If I could use my experience to stop others from having to go through it I will gladly do so the thing is it takes someone willing to listen and actually care enough to look.

Interested in more discussions like this? Go to the Skin Health Support Group.

I'm struggling. Does anyone know who treats this? Is there any doctor out there who treats this please?!?!?!

REPLY
@johnbishop

Hello @macschic, Welcome to Connect. Sorry to hear you are dealing with the same symptoms as @buddybuddy. I'm not sure this member is still following Connect but hopefully they will see your post and respond. I have don't have sabra
dermatitis and the only information I've found has been through PubMed (https://pubmed.ncbi.nlm.nih.gov/?term=sabra+dermatitis&sort=date) and Google Scholar (https://scholar.google.com/scholar?q=sabra+dermatitis+treatment&hl=en&as_sdt=0,24)

@buddybuddy posted above that they saw an ENT doctor and had 4 viruses from the cactus and needs to be treated by IV.

Have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic?

Jump to this post

I have the exact problem after hiking on a remote cattle ranch in NM!
It's been 6 years, and I've seen at least 6 dermatologist's. 2 Rheumatologist's due to severe joint swelling & pain.
I have brought research papers on prickly pear glochids, that describe my symptoms exactly. For six weeks I hiked this rural, cactus infested ranch. I picked Prickly Pears with leather gloves, and could never wear them again, due to the glochids penetrating the leather, and never came out. I had glochids embedded everywhere, with no information available to help. My skin is scarred, and granulomas have formed filled with these spines.
I was labeled a picker, like the other gentleman, and turned away, repeatedly, with absolutely no relief.
I have several environmental allergies, and the embedded glochids cause my skin to erupt. My health deteriorated rapidly over the years. I called Mayo Clinic 3 times and begged them to help me. I was turned away.
Drs need to listen to what happened to the patient. From the beginning, I told them, I was exposed to them for 6 weeks, and would try to scub them out everynight with a buff puff.
I now know that was the worst thing I could have done. Someone please help me find a Dr will listen, and help me. I have become a recluse, and want someone to listen & help!

REPLY

Welcome @bridgettekh and @marcy154, I'm sorry that you both are having difficulty finding a doctor that treats sabra dermatitis. I'm not sure if you have tried contacting a teaching hospital but it might be a good place to start looking for a dermatologist or specialist that has some experience with the condition. Here's a list of U.S. Teaching Hospitals - https://healthguideusa.org/teaching_hospitals.htm.

One of the doctor researchers for the following 2020 research on sabra dermatitis has an email address on the paper and might be able to offer some doctor suggestions by contacting her.
-- Sabra dermatitis: combined features of delayed hypersensitivity and foreign body reaction to implanted
glochidia: https://escholarship.org/content/qt2157f9g0/qt2157f9g0_noSplash_ce5d0d33607b76ef99e9dcd44464be77.pdf

@marcy154, You mentioned you tried calling Mayo Clinic 3 times and were turned away. Mayo Clinic has more requests for appointments than available openings in some departments. It might be worth trying to get a referral from your primary care doctor. Another option might be a Mayo Clinic Care Network member where there doctors are able to access all of Mayo's resources and collaborate with specialists at other locations. Here's more information - https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members.

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