Could be worse! My neurologist thinks I may have ALS (next appointment in a week) and the only drug that might slow it down (only give another 4-6 months of delayed symptoms) is $145,000/yr and no indication whether insurance will cover it since it is an orphan drug. I might try a clinical trial at Jefferson since that won't cost anything, but there is a 50/50 chance that I'll actually get a placebo.