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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 15 hours ago | Replies (854)
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@thencea

I was diagnosed this summer and am swimming in data from FISH tests and bone marrow biopsies. My cytogenetics indicate a higher probability of progression to MM from MGUS. Does anyone else have these markers and be willing to share your story?

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Replies to "I was diagnosed this summer and am swimming in data from FISH tests and bone marrow..."
lorkish | @lorkish | Dec 8 3:16pm

I was diagnosed in 2023. Bone Marrow biopsy showed MYD88 gene mutation thus diagnosed with Waldenstrom’s Macroglobulinemia. Am still on “watch and wait.” Doctors believe covid shot caused it all.

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Colleen Young, Connect Director | @colleenyoung | 1 day ago

@thencea, sometimes having so much data can make you feel like you're drowning in information overload. I hope you've seen the helpful replies from @pmm @lorkish and others.

What monitoring schedule has your hematologist suggested? How are you feeling about the follow-up?

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