Connect
← Return to Enzalutamide (Xtandi): Anyone have experience with this drug?
Discussion
Enzalutamide (Xtandi): Anyone have experience with this drug?
Prostate Cancer | Last Active: 3 days ago | Replies (69)Comment receiving replies
I had brachytherapy in 2009. I had a biopsy of my prostate in December 2023. 12 of 12 sample clear. However. a small mass was detected by MRI in July 2024. I have been on Xtandi and Hormone treatment since August. I would like to hear others experience on the side effects of Xtandi? Is this a forever drug, even with the 6 month hormone injection. I find myself getting very tired easily, I have lost my appetite (and 30 LB). I am an active 77 yr old and this is very new to me. Is anyone else experiencing this same side effects?
Replies to "I had brachytherapy in 2009. I had a biopsy of my prostate in December 2023. 12..."
Hi @gooseknoll, I moved your question about hearing other men's experience with Xtandi to this related discussion:
- Enzalutamide (Xtandi): Anyone have experience with this drug?
https://connect.mayoclinic.org/discussion/xtandi-2/
Click the link to read through previous comments and to reply to any other them to connect with others.
Since you are also taking hormone treatment, you may also wish to read these discussions:
- Does a person need to take Lupron and Xtandi at the same time?
https://connect.mayoclinic.org/discussion/dose-a-person-need-to-take-lupton-and-itandi-at-the-same-time/
- Lupron treatment and Fatigue...
https://connect.mayoclinic.org/discussion/lupron-treatment-and-fatigue/
Fatigue is a common side effect. Have you asked your oncologist about the length of time you'll be on this treatment?
Connect
Xtandi (Enzalutamide) Side effects can be too much for some people. Darolutamide (Nubeqa) does essentially the same thing as Xtandi But has many fewer side effects, including less fatigue. You might request your doctor change your prescription over to Nubeqa. I have Been on it for over a year and it has kept me undetectable for The last year. I know a number of people that are taking Nubeqa And are very satisfied with the side effects. Many are taking it without ADT (hormone drugs) including me for The last couple Of months.
I am 77 and it doesn’t slow me down.