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Hodgkin Lymphoma was stable, now new activity

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (26)
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@hnipper1

Hi, all,
I was reading submissions to the group today and realized that it has been a while since I commented about my NSHL - the new node that showed up. I am happy to say that since that time, my oncologist here at Creighton in consultation with those at Mayo has added bendamustine to my nivolumab routine. The result over the last two years is that the lymphoma seems stable, and in fact shrinking a bit each time I get a PET (now CAT) scan! Happy to say that stable is good! Writing this over Thanksgiving weekend seems appropriate and going into the Christmas Season, I consider that I have been given a wonderful gift of additional years of survival. I am very grateful, and try to pass that sense of gratitude to others around me.

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Replies to "Hi, all, I was reading submissions to the group today and realized that it has been..."
Lori, Volunteer Mentor | @loribmt | 1 day ago

Hi @hnipper1. So happy to see you pop into the conversation, and with such a positive update! That’s a holiday brightener for sure to see that your NSHL is stable with the nivolumab/bendmustine regimen.

I know exactly what you mean about feeling so grateful to have been gifted extra years of survival! It is a gift like no other. For me it’s difficult to even translate the emotions into words!

So thank you for sharing your message of gratitude and encouragement! By doing so, you have just offered the gift of HOPE to others who might be diagnosed with Nodular sclerosing Hodgkin lymphoma.

Wishing you a wonderful holiday season with family and friends!

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