Saying Goodbye

Posted by alive @alive, Nov 29, 2024

Last summer I connected with a woman who was diagnosed with AML and was getting ready for her stem cell transplant. Since I went through all of that over eight years ago and we lived in the same state, I reached out to her.

She had a lot of ups and downs before the transplant and was dealing with several serious infections. She finally received her transplant at the end of the summer, which was successful. We finally met in person when I had to go to Mayo for my routine appointment. She was staying at a rehab, since she was two months post transplant and was still on oxygen. We talked for a bit and I shared my transplant story with her. We continued staying in touch, though I could tell that she struggled with texting back and forth. I texted her yesterday to wish her a happy Thanksgiving and received a text back from her husband - she passed away that afternoon because of further complications with her lungs.

Saying “goodbye” after the passing is bittersweet. I remembered how much she hoped that she would recover one day. I also remembered the challenges I faced with my diagnosis and my transplant. In both of our cases, transplant was the only option for a cure, but that doesn’t mean that the recovery is going to be a smooth sailing. Good bye, my new friend!

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Ftom a MDS/AML patient...What a text. I just read comments from several warriors about other warriors. How great is that.

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@gingerw

@alive I think it can be our mission to be an example for others to look to, no matter our situation! I have active multiple myeloma, plus endstage kidney disease. I was going to try for a kidney transplant earlier this year. In conference with both oncologist and nephrologist, the transplant center said I needed a SCT before evaluation for kidney transplant. Long story short, my chances of surviving a SCT are not good. So, I am on dialysis rest of my life, and reaching out to others who have a similar situation, to tell my story. So much is about attitude, and how we can do the best for ourselves and the rest of our medical team [we're a part of that, you know!]
Ginger

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Ginger, I am sending you so much love. Thank you for being our Volunteer Mentor while also dealing with several difficult diagnoses.
I have ET (triple negative) for the past 22 years. I help to run a local cancer support group in my community. Being there for others and developing a supportive community has been very important to my well being and judging from the group cohesiveness we doing a pretty good job helping others as well.
Thank you, you are now a role model for me.

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