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Rare acute leukemia, both ALL and AML (mixed phenotype acute leukemia)

Blood Cancers & Disorders | Last Active: Dec 12, 2024 | Replies (8)
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@lizzyket

I have looked into things and talked to HR about leave. Thankfully I've only taken a couple weeks of leave because I've put my foot down on his family to stay here with him while I'm working. I'm trying to save the FMLA for potentially going to Texas and for when he may need my help more (he's doing well physically now). I know 12 weeks seems like a long time to most but with a rare form of acute leukemia it's really not that long... this is a very long road for us. my job is also supplying us with health insurance so I want to do everything I can to keep my job. This is why I've told his family they have to help. The income has also eased a lot of the financial burden so that we can stay in the same home and afford our mortgage . thank you for your help

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Lori, Volunteer Mentor | @loribmt | Dec 1, 2024

You have a lot on your plate right now and asking your husband’s family to help is the absolute right thing to do! This is when family needs to step up and help out…and it’s not too much to ask! Good for you! ☺️

I had a bone marrow transplant that required my husband and I to relocate to Rochester for 4 months. So I can truly appreciate what you’re going through with the time commitment, logistics and the responsibility of being the caregiver. The difference is that we were both retired at the time and our jobs weren’t being affected. For you, that is all an added concern.

Hopefully all the ducks get in a row soon and your husband can get into the trial program if he needs it. Is he on continued meds right now?

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