Connect
← Return to Ready to throw in the towel
Discussion
Comment receiving replies
Thanks for sharing your story. I was also diagnosed in my 50s, but the cancer had already gone to my bones, and I was rapidly paralysed from the ribs down due to spinal compression
For me, ADT (Firmagon, then Orgovyx) and ARSI (Erleada) were part of my path back to a good quality of life, rather than something that interfered with it. 3½ months staring at a hospital ceiling (missing Christmas with my family) and then over a year of hard physio put hot flushes, sexual dysfunction, fatigue, and mood swings in a different perspective; I'll do anything to keep the mobility I managed to claw back and avoid going back into hospital.
That's probably why my attitude is different — if I'd been feeling good but then put on ADT because of a biopsy result for something I couldn't even feel, I'd probably really resent ADT as well; but having experienced first hand the raw destructive power of cancer once it gets moving through our bodies. if I were a regular praying person, I'd thank the lord for ADT and ARSI on my knees every night before bed.
YMMV
Replies to "Thanks for sharing your story. I was also diagnosed in my 50s, but the cancer had..."
@northoftheborder
Whenever I read your posts my heart reaches out to you. I wish I had the ability to do more or say something more.
I am not a medical professional nor an expert in anything on MCC. But please know those of us on MCC feel for you. Quite frankly how you can be so upbeat with what you have and are going through.
You are still a young man (I am 77) and I wish you the best in your treatments.
| For me, ADT (Firmagon, then Orgovyx) and ARSI (Erleada) were part of my path back to a good quality of life, rather than something that interfered with it. |
This makes total sense. My experience was different in that I had no symptoms and was feeling great then suddenly was told "you need these treatments ..." after which I felt like utter crap.
My prostate cancer mentor told me he's developing a half hour class on ADT for a hospital system with the goal of better preparing men for what to expect. I think, for me, not being told all the various things that would happen made it a lot harder than it had to be vs. "you'll be tired and have hot flashes."
Had I known a few weeks ahead what to expect it still wouldn't have necessarily been easy, but it WOULD have given me time to mentally prepare.
Connect
@northoftheborder
That makes perfect sense to me. You sound like a true warrior and a inspiration to all cancer patients. I think what is great about these boards is we can all see how the story is different for each and everyone of us. Thank yo for the reply!