← Return to My Experience on Evenity for Treating Osteoporosis

Discussion
Comment receiving replies
@spiderplant

As kmichels writes one has to be proactive but it sure can be tough / confusing. In my case I wish I could get a second opinion as far as post-Evenity plans but as that means waiting months for an appointment that's off the table.

I am two months after my last Evenity year of shots and sounds like most people here were told to be concerned about losing their gains and go into another treatment soon after. I had my scan 6 weeks after and doctor appointment 7 weeks after (tried hard to get it sooner but no luck) and the endocrinologist insisted that gains remain for 3 months and seemed totally chill on the subject… seems we all are told such different things!

He’s encouraging me to go with Reclast saying 30% feel sick the first few days and then are fine and yes heart issues are rare but possible (didn’t mention the serious kidney issue risks) … or I could go with Fosomax but that it’s less effective. My dentist said Reclast is very potent stuff and better in general to take another option.
...I’m 64 and changes after Evenity (6 weeks later) were spine -3.7 to -2.4, hip -3 to -2.7, f.neck -3.4 to -3.1 and arm -2.2 to -2.4.

This doctor is in a well known big hospital. Years ago I was sent by the head of another department for a put in as urgent MRI — they saw me late at night that same day — for something all doctors said after was obviously unnecessary. It left me with a fear that I’m trying to get over that there’s incentive to push for whatever they can bill for and not necessarily what's best there. They get nothing from Fosomax as we get that from any drugstore. So I’m nervous that just as the department seemed lackadaisical about my appointment timing now might me about the treatment options.

Or maybe he’s on the ball with all of it and weighs sensibly risk vs gains?

I had a female endocrinologist initially who was detail oriented and got into the weeds with her concerns and explanations but she chose to go into another specialty. So wish I had her ear now!

But what to do next with confidence: I just don’t know.
It’s great to be able to read other’s thoughts and experiences though.

Jump to this post


Replies to "As kmichels writes one has to be proactive but it sure can be tough / confusing...."

Maybe you could request a lower dose of ReClast. That is something I will be giving serious consideration to.

@spiderplant I have a lower dose but more frequently- of Reclast. I have kidney disease and get IV hydration (but really two big cups of water are the same) and an infusion over an hour. The first time I had a fever and was fluish but have been fine since. I react to everything but Reclast has been fine.

My doctor wanted me to have Reclast before two months was up after Evenity but I only did 4 months of Evenity (after Tymlos) so the antiresorptive effect of Evenity for me may have been lower.

@spiderplant, How did you get to have so many body parts measured on your DEXA? Is there a way your Dr puts in for that. My DEXA was only on my decanter and spine, even though my Dr put extremity on the script. I asked for wrist, but the tech wouldn't do it.