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Rare acute leukemia, both ALL and AML (mixed phenotype acute leukemia)

Blood Cancers & Disorders | Last Active: Dec 12, 2024 | Replies (8)
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@colleenyoung

@lizzyket, I hope you saw @loribmt's helpful post. I'm also tagging fellow members like @drwill @hectorhectoenriquez @redgiles @rjgregory440, who I believe have received care for a blood cancer at MD Anderson and who may be able to offer tips about long-term stays in Texas.

I agree with Lori that you should contact Mayo's HR should you and your husband need to go to Houston for treatment and a long-term stay.

Lizzy, am I understanding correctly that your husband has mixed-phenotype acute leukemia (MPAL) - a rare leukemia - and in your husband's case has characteristics of both AML and ALL?

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Replies to "@lizzyket, I hope you saw @loribmt's helpful post. I'm also tagging fellow members like @drwill @hectorhectoenriquez..."
redgiles | @redgiles | Dec 12, 2024

@lizzyket -- Lizzy, I was diagnosed with MGUS about 2 1/2 years ago by random bloodwork with my PCP. Was already in the MD Anderson system. I had breast cancer 26 years ago and I have my annual mammogram at MDA. When MGUS was diagnosed I began seeing Dr. Saini - annual bloodwork & urine collection in August. So far my status has not changed. I live in Spring Branch (north of San Antonio). We also have a home near Hobby Airport, so I have place to stay at when I am in town for visits to MDA. For long term stays, you might check about Rotary House - located within the MDA system. Message me if I can answer any other questions..... Jackie G

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