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Severe Insomnia with Fibromyalgia - How to Cope

Fibromyalgia | Last Active: Dec 7 9:12am | Replies (23)

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@loriesco

@eascusa I am so sorry and I KNOW what you are going thru from your description! Let me ask. you if you drink ANY alcohol? (even if you aren't a big drinker). I promise you, even a little disturbs your sleep pattern and gets you up to pee at night! I really have enjoyed a little alcohol since I was 12 and at 67 I am finding that it interrupts sleep and increases PAIN! Do an experiment and stop for few nights and experience the difference. Then, I also want you to look up "Interstitial Cystitis" and even if you don't have it, I want you to adjust your eating habits as if you did (basically low acidic foods). Then drink water, and noncaffeinated beverages after 6 pm and stop by 9 pm. and do your last pee before stepping into bed with a bedtime "ritual." Computer monitor, phone, TV: DO NOT WATCH WITHIN A HOUR OF BEDTIME. This is a BIGGIE! No checking messages or social media! Stop watching TV and do your bedtime ritual.
Edema: STOP SALTING your food and use herbs and paprika/pepper (I have edema life long!) NO SALTED FOOD. Your body starts processing the water to excrete while you try to rest. ALSO the edema sits on your BRAIN when you are horizontal and that is interfering with your sleep.
Diabetes: Make sure you have had your vitamin D levels checked and if its easier -- just take a 2,000 IU vitamin D OTC every morning. (it will help with AIC too)
Drink water during the day and eat veggies in favor of fruit.
Exercise: take a 20 minute walk in the morning and another in the afternoon, if you do nothing else, do that every day.
Limit caffeine: Only 1 or 2 cups coffee in the morning, a cup of green tea in the PM, herbal the rest of the time. Even decaf will keep you awake!
No big meals after 6:30 pm. A light snack before bedtime. Popcorn or hard boiled egg or carrots and ranch dressing. NO SUGAR! No oranges, NO GRAPES! (OMG do they get me stimulated!)
Let's switch over to hormones. BIOIDENTICAL HRT! That mimics your own body. You don't gain weight, your breasts aren't tender and it HELPS EVERYTHING - especially SLEEP! You will need to research a doctor and there is a great section here in the forum where we've discussed it. (I think part of it is in the Tymlos section. It takes a while, if you get a good doctor because they test, test 6 months later and adjust, and then add the testosterone later and adjust. It should take about 9 months or so to get it right.
I cut out on hour of sleep and I don't miss it at 67!
You don't need all that crap you are on! That is making your memory bad, adding groggy and fatigued feeling. Things like the Trazalone are "hypnotics" and sounds like you are like me and hypnotics DONT WORK for sleep unless you have simple anxiety (which you don't). You need a sleep aid like the Temezapam.
I'd suggest picking a weekend or couple of days you can put these things into play all at once and RESET your body. Know that the anxiety will come up as you face your fears. Take a hot shower/batch, do exercise that day, get a good book to take to bed, have a hot cup of herbal tea, a dark room, SUPER COMFY bed - my luxury is plush pillows to sink into and warm room to fall asleep in (but drop the temperature for overnight sleeping your body needs that) and give the process two or three nights to see how you adjust. PMS was a killer for me. 10 days before menstruating I'd get edema and insomnia and walk around like a zombie. First day of menstruation I would sleep the best sleep ever! Effectively what I did was replace the anxiety and fears about insomnia with the feeling of deep relaxation and knowing what that feels like drifting off to a deep and peaceful slumber. Its impossible when you go into menopause early - no your doctor wasn't kidding! Report back if you make some of the changes and let me know if this worked for you! good luck!

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Replies to "@eascusa I am so sorry and I KNOW what you are going thru from your description!..."

Hi, thanks for your post. You might not believe this because you sound pretty sure, but I drink alcohol at all. I hate it! It makes me sick. At least it did the last few times I tried it which was several years ago. I did when I was a kid. In social situations but I am 48 now. I am scared to mix it with my meds, and I am a Diabetic. Plus, from what I remember it made my body flush and hotter. That is a big no, no for me. So, no I don't drink. I drink a lot of crystal light though and have been wondering about all the dye that is in the one I drink. It has that red 40 or whatever. I read that it gives allergies to kids and hyperactivity. But I don't know about adults.
I also don't put salt on any of my food. I never have. So, that can't be a problem. And swelling and bloating is huge for me. I know I have got to be allergic to something. Although, I had a food allergy test done a long time ago and it said I wasn't. I have wondered about salt before though because of all the salt that is put in prepackaged food, t.v. dinners, etc. anyway. Everything we buy like that has a lot of salt that automatically is put in it for flavor. But as far as adding it myself. No, never. Except when I make my chicken noodle soup.
I keep it really cold in my room or else I would never fall asleep or stay asleep at all. I have comfy stuff that I went all out doing for myself. And I have it completely dark because I am weird about that too.
Oh, I do vape though. It has nicotine in it but the lowest amount. I have been told I need to stop and that it would help but right now I really don't know if I want to. I have been smoking since I was 13 years old. As it is I went from almost a pack a day to vaping the lowest. No more cigarettes though.
As far as anxiety goes. I have tachycardia and this is a problem for me because that can feel like anxiety. It is sometimes hard to tell the difference. I am on a beta blocker for it. I have been for a long time. But lately, my heart rate has increased so I will be going back to the doctor to increase my dosage. I don't have so much generalized anxiety anyway. I have social anxiety. That is one of the reasons I don't go out. But I get bad anxiety if I know I have to go somewhere, even to the doctors, or do anything. Whatever date it is I will be worked up until that day and then have a full panic attack. This has gotten worse for me as well. I have no idea what to do about that. No anti-depressant has worked. It is hard enough to have my Resoril at night. Doctors don't want to prescribe anything that is addictive. As it is my last doctor brought down the milligrams. I have no money to go see someone. Not because of insurance but because I would have to drive at least an hour to get to anyone. Same problem with regular doctors. And I would have to get someone else to do the driving because my diabetes has affected my eyesight. It is kind of funny because in order to go get help from a psychiatrist or something you have to do the very thing that gives you the panic attack in the first place and this makes me not want to try. I feel like I am always going in circles.