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@alive I think it can be our mission to be an example for others to look to, no matter our situation! I have active multiple myeloma, plus endstage kidney disease. I was going to try for a kidney transplant earlier this year. In conference with both oncologist and nephrologist, the transplant center said I needed a SCT before evaluation for kidney transplant. Long story short, my chances of surviving a SCT are not good. So, I am on dialysis rest of my life, and reaching out to others who have a similar situation, to tell my story. So much is about attitude, and how we can do the best for ourselves and the rest of our medical team [we're a part of that, you know!]
Ginger
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Ginger, I am sending you so much love. Thank you for being our Volunteer Mentor while also dealing with several difficult diagnoses.
I have ET (triple negative) for the past 22 years. I help to run a local cancer support group in my community. Being there for others and developing a supportive community has been very important to my well being and judging from the group cohesiveness we doing a pretty good job helping others as well.
Thank you, you are now a role model for me.
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You are absolutely right about the importance of having the right attitude! You are going through so much! I can’t even imagine needing multiple transplants and having poor prognosis for recovery!