← Return to My Experience on Evenity for Treating Osteoporosis

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@kmichels

For those of you that are considering Evenity, here is my journey. My August 2023 DXA results were as follows: Lumbar -3.0, Left Femoral Neck -2.5, Left Total Hip -2.5, Right Femoral Neck -2.8, Right Total Hip -2.7. It took 10 weeks for BCBS to approve the Prior Auth (infusion center had to request it). The shots in the backs of my arms felt like rug burns for about 2 days. I felt slightly flu-ish within 6 hours of the shots, tired, low energy and headache. The next day I felt great except for the rug burns feeling. As the months went on, aching in my hips and thighs would wake me up. During the day I never felt achy because I moved around so much (walk 6+ miles per day). My DXA results from 11/29/24: Lumbar -2.5, Left Neck -1.5, Left Hip -1.9, Right Neck -2.3, Right Hip -2.3. Percentage improvements: Lumbar 8%, Left Hip 11%, Right Hip 8.5%. I’ve been awaiting an answer from BCBS (7 weeks so far) regarding starting Prolia. It’s been denied once. They said I have to try a bisphosphonate for a year. An appeal is in process. I’ve already passed Amgen’s recommendation to follow up with another drug within 3-5 weeks of Evenity. BTW, for those that need help paying for Evenity or Prolia, Amgen has a great Co-pay program. They are all extremely helpful but you have to be proactive for yourself on everything about this disease!

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Update…It’s been over six weeks since my 12th dose of Evenity. I’m still waiting to hear if I will get Prolia (denied by BCBS twice) or Reclast. The middle of the night aching in my hips and thighs is more intense now. Not sure what that’s all about.