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Severe Insomnia with Fibromyalgia - How to Cope

Fibromyalgia | Last Active: Dec 7 9:12am | Replies (23)

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@loriesco

In my case, lack of sleep, made the fibromyalgia worse (My body was more sensitive to pain). You didn’t say how old you were, But after 20 years, I can suggest from experience that hormonal changes should be looked at. I lost my sleeping patterns when I was 37 because my son woke several times a night for six years. But guess what else happened? My hormones waned. I tried everything. For 30 years a periodically use Temezapam/Restoril as a sleep aid. It was especially helpful when I was pre-menstrual as I suffered from edema and that would keep me from sleeping as well. I never found it addictive it would just reset my sleep patterns and off I’d go. When I was menstruating, I’d probably use it for about four or five nights, And as soon as I get my period and sweat sleepless nights were over. after I went through menopause early at 47 I did bio identical hormone replacement therapy. When my hormones were balanced, I could sleep through the night. When I was off the hormones, I didn’t sleep as deeply or as well. I suggest talking to your doctor about the effects of your hormones on your sleep. At 67 I am back on hormone replacement therapy and sleeping solid at this age. I do sleep about an hour less a night. I also know I do not sleep well when the weather becomes very warm at night during a weather change. I wanted to mention , those couple of things in addition to all the other things people posted that can be contributory factors. Good luck there’s nothing worse than feeling sleepless during the day!

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Replies to "In my case, lack of sleep, made the fibromyalgia worse (My body was more sensitive to..."

Hi, you seem to have similar things as me, and I have severe sleep issues. I also take Temazepam at night plus 2 to 3 Tylenol PM's. It is the only thing that will allow me to fall asleep. I have to do this every night though. I then wake up in about 2 2 1/2 hours and then every half hour to 45 minutes after that. That is if I managed to go back to sleep at all. I get up to go pee about 3 or 4 times a night. I make myself or else I will have anxiety about going that will keep me up as well. I can kind of drift back off but constantly wake up like I said. I never do get any more sleep really than that which is the 2 to 3 hours. I think it is because of many different reasons though. After a few years of this, my pain has worsened so much, my memory is so bad, depression, and just about everything. When I was in my 20's I was put on Testosterone, Progesterone, Estrogen, and Pregnenolone. My doctor said I was like a 90-year-old with a hysterectomy. I think he was trying to be funny. I had sleep issues then too. But all the hormone creams never helped. He said it would take a very long time but after a year and a half of putting all that on every night, I gave up. I used Seroquel back then and then trazodone to sleep. It put so much weight on me and for other reasons, I can no longer remember I was taken off it. According to my doctors, my hormones look normal now, well, as of almost a year ago, yet I stopped having a period in my 30's. I am now 48. I don't know how I managed to have my youngest son at 30. Anyway, I saw that you said you were put on bio-identical hormone replacement therapy. I was wondering what that was all about. What doctor gave that to you? My Fibro doctor who had me on hormones many years ago believed that Fibro was mostly about hormones. It seems to have a lot to do with many of my problems, I think. I am glad someone posted the same thing I was wanting to ask. And am sorry to hear others have sleep problems but also relieved that I am not completely alone with insomnia and bizarre sleeping patterns. Oh, and I also suffer from edema and am on hydrochlorothiazide which probably doesn't help with me peeing all the time. But I take it in the morning and am also Diabetic so I don't think there is anything I can do about the trips to the bathroom. But it isn't what wakes me up though.