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Can anything prevent peripheral neuropathy after stem cell transplant?

Posted by deb913 @deb913, Oct 15 3:31pm

Hi - I am having a stem cell transplant Oct 30 and have some peripheral neuropathy now, so I'm concerned it will get worse after transplant and want to do anything I can to prevent it from getting worse. I'm confused about what causes the PN - is it from the chemo or from GVHD? If it is from the chemo, has anyone tried cool packs on hands/feet during chemo to try to prevent it? Any other ideas or information on how to prevent PN after transplant? Thanks so much.

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yvonneam | @yvonneam | Nov 26 3:06pm
In reply to @yvonneam "Hi Lori, Yes mine will be anthologist, stem, cell transplant, isolating in our nearby condo instead..." + (show)
@yvonneam

Hi Lori,
Yes mine will be anthologist, stem, cell transplant, isolating in our nearby condo instead of being in the hospital for five weeks like my daughter was.

Yes, I see her as the trailblazer which allowed for me to have an easier time with this experience.
My target date is Mid-February.

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Oops autologous not anthologist.
And yes, sharing a birthday or anniversary would have been my first choice.

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Mentor
Lori, Volunteer Mentor | @loribmt | Nov 26 5:26pm
In reply to @yvonneam "Hi Lori, Yes mine will be anthologist, stem, cell transplant, isolating in our nearby condo instead..." + (show)
@yvonneam

Hi Lori,
Yes mine will be anthologist, stem, cell transplant, isolating in our nearby condo instead of being in the hospital for five weeks like my daughter was.

Yes, I see her as the trailblazer which allowed for me to have an easier time with this experience.
My target date is Mid-February.

Jump to this post

I wish you well with your transplant. Don’t hesitate to check in here on Connect. There are many members who have had an autologous BMT for MM or other conditions. It can help being able to talk with someone who has walked the same walk…though your daughter was a brave trailblazer for you already! ☺️ Will she also be your caregiver?

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merrle | @merrle | 4 days ago

I see this is an older post, but will comment in case it is helpful. I had peripheral neuropathy prior to my cancer diagnosis it worsened someone with Velcade and then at the time of transplant, but at 13 months out, it has improved and really doesn’t cause me any significant problems despite ongoing chemotherapy. Hoping that you have minimal difficulty with this.

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1 reply
deb913 | @deb913 | 4 days ago
In reply to @merrle "I see this is an older post, but will comment in case it is helpful. I..." + (show)
@merrle

I see this is an older post, but will comment in case it is helpful. I had peripheral neuropathy prior to my cancer diagnosis it worsened someone with Velcade and then at the time of transplant, but at 13 months out, it has improved and really doesn’t cause me any significant problems despite ongoing chemotherapy. Hoping that you have minimal difficulty with this.

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Thank you Merrle. That is very helpful because it gives me hope that if my PN does get worse it might get better. It’s all about keeping hope alive 😀 I am about 3 weeks post transplant and so far no increased PN.

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1 reply
merrle | @merrle | 3 days ago
In reply to @deb913 "Thank you Merrle. That is very helpful because it gives me hope that if my PN..." + (show)
@deb913

Thank you Merrle. That is very helpful because it gives me hope that if my PN does get worse it might get better. It’s all about keeping hope alive 😀 I am about 3 weeks post transplant and so far no increased PN.

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I was in pretty rough, shape at three weeks post Transplant but things really did get better and better. Even at month 12 I saw some improvements.Hang in there! Let us know if you have either worried about, maybe we can help.🤗

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