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Pulsatile tinnitus

Ear, Nose & Throat (ENT) | Last Active: Apr 28 8:52am | Replies (179)

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@caroland75

I developed Pulsatile Tinnitus almost 3 years ago. It has caused me immense distress. It is a constant hissing whooshing in both ears in prefect accord with my heart beat. So I hear my A Fib exactly. I had a cardiac ablation 5 months ago & still hear the AFib. I've been to ENT, CT scans, temporal bone x-rays, interventional radiologist, had brain angiogram & venogram, Manometry test, none of which has been able to ID the underlying cause. I had 2 Covid 19 shots & 2 boosters and then contacted Covid, pretty mild case - then the PT showed up.
Has anyone suffered similarly and been able to find a treatment or cure the PT?
Thank you!

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Replies to "I developed Pulsatile Tinnitus almost 3 years ago. It has caused me immense distress. It is..."

I had the same thing for over 2 years. I went through the same testing, and tons of blood work and they couldn't tell me anything about what was causing it! I even had an angiogram! Finally, my bones were hearting all over my body, so my doctor ordered a lot of blood, including an inflammation marker test with high inflammation marks. They gave me one month of steroids. I am much better now, the constant whooshing is gone, except when I exercise!

Now, I am waiting biopsy on my forehead because there is growth in my sinus bone! I am still not done, but I think the steroid helps! I will update you along the way. Hang in there and good luck.

Perilymph Fistulas are hard to diagnose and most often times are not able to be seen on imaging because the amount of fluid leaking is such a small amount. When they put air pressure in my ear, it causes nystagmus and vertigo. Also, if I seal my ear with the tragus and pump the tragus, it causes the same symptoms. I’ve had two surgeries for perilymph fistula, but the grafts keeps failing. They were able to visualize the fistula’s during surgery. There is a Facebook group called Perilymphatic Fistula. Lots of similar stories.

Yes, I also began getting Tinnitus after getting my Covid shots back on Feb 4th 2021 and March 4th, 2021 (my husband never got Tinnitus and he had the shots same time as me!) Never got more Covid shots after those, but shortly after getting the shots I began getting Tinnitus. Now just this year, in early February, I started getting Pulsatile Tinnitus! Got figure! But I only get it in my left ear. Since this started, I've had a number of tests including a brain MRI, w/ and w/out contrast (my ENT sent me for that), and an ultrasound of both my corroded arteries (my cardiologist sent me for that). But these tests show no signs of anything untoward! I know the Pulsatile type can be a symptom of hardening of the arteries and a number of other things so I'm still investigating. But it just came up out of nowhere. It seems that I got the regular tinnitus from my COVID shots, but this pulsatile thing is awful, and combined with the other tinnitus it's very disturbing and the Pulsatile just started this past February, 2025, so I'm really just wondering what the heck it means!