I had the same thing for over 2 years. I went through the same testing, and tons of blood work and they couldn't tell me anything about what was causing it! I even had an angiogram! Finally, my bones were hearting all over my body, so my doctor ordered a lot of blood, including an inflammation marker test with high inflammation marks. They gave me one month of steroids. I am much better now, the constant whooshing is gone, except when I exercise!

Now, I am waiting biopsy on my forehead because there is growth in my sinus bone! I am still not done, but I think the steroid helps! I will update you along the way. Hang in there and good luck.

Perilymph Fistulas are hard to diagnose and most often times are not able to be seen on imaging because the amount of fluid leaking is such a small amount. When they put air pressure in my ear, it causes nystagmus and vertigo. Also, if I seal my ear with the tragus and pump the tragus, it causes the same symptoms. I’ve had two surgeries for perilymph fistula, but the grafts keeps failing. They were able to visualize the fistula’s during surgery. There is a Facebook group called Perilymphatic Fistula. Lots of similar stories.