← Return to Diagnosed with IBS…could it really be that?

Discussion

Diagnosed with IBS…could it really be that?

Digestive Health | Last Active: 16 hours ago | Replies (23)

Comment receiving replies
@cheyne

Hi,
A diagnosis of IBS is given because they have no other idea of what you have. IBS is not a disease it is a convienient label given when they have no idea what is wrong with you. I have put up with it for 13 years and only recently did Dr's start making real diagnoses for me after my continual protestations. I had to point out this is not a life I wish to have, with no help I'm left with the alternative of suicide to stop the discomfort, cure or kill their choice. For the last 18 months I have been under a Gastrologist who has risen to the challenge and we have made some minor advances. Thirteen years of hell with a conveinient label of IBS has turned into Autonomic polyneuropahy this year and yesterday CSVD, cerebral small vessel disease. I'm guessing treatment is going to take 10 years to happen at the lacksadaisical way health "proffesionals"conduct themselves. I have lost track of the times I have been told it is psychologial. After MRI imaging they are now facing a dose of humble pie when we meet again! Yes there are tell tale signs of health issues which greatly enhances my assertion I'm not crazy, there is something wrong physically.
All you can do is keep asking difficult questions and put them on the spot, question their diagnosis and don't settle for less. Just remember you are your best advocate and the old addage of the squeeky wheel gets the oil, does work.
Cheers

Jump to this post


Replies to "Hi, A diagnosis of IBS is given because they have no other idea of what you..."

Yes thank you! I advocate for myself and am constantly doing research. I’ll accept what’s wrong with me but it has to be the right diagnosis. I just don’t know anyone or have heard of anyone with IBS like mine. My life is beyond bad for two years. I just need to know they got it right.