Hi @zeedee1. Looks like the approval for Rituxan finally came through from your ensurer! I don’t know why we should have to practically beg for our meds but whatever, you’ve gotten the green light…so now the next step.

Starting a new drug can be a little intimidating. I’ve had Rituximab infusions and I know there are quite a few other members in Connect who have received this medication. For me, it was an absolute lifesaver. I didn’t have any side effects at all other than it seemed to quickly get my condition under control!

This medication is provided in an infusion center like your local hospital or your oncologist’s office. You won’t need a port but you will have a small IV line run in your arm or hand. Painless and will be removed after each session.

The meds are infused slowly to avoid any potential reactions. So you may be there for a couple of hours, especially for the first appointment. It’s very common for a slight allergic response during the first infusion. The nurse is right there with you, prepared with Benadryl and steroids that are injected into that IV line. I know it sounds scary but it is handled so matter of factly by the nurses that it’s really a non-event. If there is a reaction, the drip rate of the infusion is slowed down to allow the body to adapt. I never had another reaction after that with the other sessions.

For the infusion session, you’ll be able to get up, walk around, use the restroom, etc. Take along a little bag of activities, tablet, book, snacks, water…

It sounds like you’re being a real trouper with taking your meds and trying to remain stoic with your family when you’d rather curl up in a blanket and shut the world out. That’s a tough challenge being brave all the time. Your positive attitude and stoicism can be helpful in keeping you moving forward even on those bad days. But it really is ok to let your family see your vulnerable side. It’s ok to ask for help. And above all, listen to your body…if it wants naps or tells you to slow down or ask for help…listen. ☺️

You mentioned family members, do you have young children? Are there family members in the house who can help take away some of the daily stress loads of housekeeping and such?