← Return to HCM-ers: Introduce yourself or just say hi

Discussion
Comment receiving replies
@karukgirl

Hello @marcl, and welcome to Mayo Clinic Connect. I am so glad you found this forum, and all the way from the United Kingdom too!
I'm sorry to hear that your father passed away at such a young age. That must have been a very difficult thing to have happen to you and your family.
You mention you were just diagnosed, as in recently. Did it take some time before they were able to diagnose you with HCM as the cause or did they know right away?
I ask, because so many of we HCM folks are misdiagnosed for years sometimes, and it's not until we have terrible symptoms of shortness of breath, chest pain, brain fog, dizziness and crazy fatigue a diagnosis is finally made.
Have you had a chance to poke around here on Connect? There is a ton of great information from members that is worth reading. Learning as much as you can about your condition will help you help your doctors help you!
Besides HCM, are you a physically active person?

Jump to this post


Replies to "Hello @marcl, and welcome to Mayo Clinic Connect. I am so glad you found this forum,..."

Hi I guess I was lucky , being an avid cyclist and competed a few times at races I do about 3-5000 miles per year, I thought given my father passing I should get checked out. On the odd occasion when I was pushing hard with a HR of 190 it would go tacycardic to over 200 just for a few mins, so I decided to get tested with ultrasound and then MRI which confirmed it. Does the condition get worse over time? and also as it gets worse does the probability of sudden cardiac death get higher?
Kind regards, Marc