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Why am I read the results of my blood test when I can read it myself

Posted by jumper123 @jumper123, 2 days ago

I just don't understand why I have to have the oncologist or nurse read me my platelet count after my blood is take because I can read it myself on MyChart! In addition, they sometimes read me my metabolic panel too. If there is a change in my numbers indicating an alarm that requires me to change my med then they can let me know and change it. The last time I was at the clinic I read the numbers mentioned above to the doctor, the nurse didn't. I read all of my test results on MyChart myself when I get home. I think my time is being wasted listing to almost the same result each month.

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dancouclanel4 | @dancouclanel4 | 1 day ago
In reply to @mortysdad "I always do the same, read my blood reports on my Mayo portal, then have them..." + (show)
@mortysdad

I always do the same, read my blood reports on my Mayo portal, then have them read them to me with or without comments. I think it's all about perspective. I try to think just how fortunate I am to have the care and concern I am shown by my medical providers, and reflect on how many suffer from this in other countries and will never experience the level of hope and healing we get to here. I am never too busy to take the time to allow them to follow their protocols to do their job as they are trained, and find myself overcome with gratitude sometimes when I realize just how good life is, even in the midst of this disease, for I am surrounded with people who want to show they care, not just about another patient, but me as a person. I heard someone say make years ago, and it rings true in my life today more than ever:
"Grateful people are happy people, and those who aren't, aren't"...
May we all choose well. Happy Thanksgiving everyone!

Jump to this post

Very well said. Happy Thanksgiving 😊

REPLY
1 reply
lynn22 | @lynn22 | 1 day ago

I agree with you. I have had blood tests every three months and the results have always been uploaded onto Patient Access for the past 5 years. I like to monitor my platelets so that I can make my own assessment as I am trying to treat my ET naturally. I have agreed with my Haematologist that if they go over 800 I will consider having a biopsy and go on Hydroxy. She is my fourth haematologist and on my second phone call with her she did not load my results having rung for them I was told my haematologist wanted to discuss with me first which then made me worry for two weeks. The platelets were 811, I am still not worried and told her as I was going off to Spain for 3 months so I was not going to start on Hydroxy. I have delayed decision until March. I feel great and as have mentioned before not good on meds. I am CALR Type 2 so not as high a risk for clots, but apparently my age is a concern as now 62!

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jumper123 | @jumper123 | 23 hours ago
In reply to @dancouclanel4 "Very well said. Happy Thanksgiving 😊" + (show)
@dancouclanel4

Very well said. Happy Thanksgiving 😊

Jump to this post

Happy Thanksgiving, to you too, have a great day!

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nohrt4me | @nohrt4me | 3 hours ago

My doc seems to understand that I read my lab results on the portal, and says something like, "So, your platelets are pretty much staying in the 400s with an occasional spike to the 500s, so I want to keep your HU at the same levels. Are you having any new symptoms?" It confirms we're on the same page and indicates she's aware that ET is NOT a symptomless disease.

So I wonder if reading your results to you is irritating because your doc isn't using the opportunity to segue to treatment goals and symptom management. That would annoy me, too.

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