Large granular lymphocytic leukemia (LGL) questions

Posted by linepa2002 @linepa2002, Dec 1, 2023

I was dxed with LGL 1 1/2 years ago was on watch and wait even in remission for a short time. I was in the hospital not related to LGL my Hemoglobin was 9.7, my Hemocrit was 27.7 and my RBc was 3.04. Two weeks later I had labs done for my oncologist , my Hemoglobin was 8.9, my Hemocrit was 26.5 and my RBC 2. 72Now he wants me to start Rutoxan infusions and I am running scared. I am a 82 year old female. Any alternatives you have please let me know. Can labs drop that much that fast? Thank you
thank you.

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@sonia85

Dear @marlow2
HOW do you feel now?
on any med ?

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I have LGLL, now and feel pretty good but having a problem raising my white count and using cytoxan. In 2013, I had surgery for a Thymoma, that I didn't know I had and it grew to three pounds by the time is was detected and removed. I had gone to the same doctor for 58 years and had many physical but never had a chest x-ray because the doctor didn't have reason to x-ray me even though I complained about a cough each fall. When I went to a CVS, nurse she said I should get an x-ray then the doctor said I had lymphoma cancer and I should go to the hospital and there they determined I had a Thymoma, and not cancer. I survived that and two years ago I decided to coat my cement driveway with sealer and think I got some vapor in my body that caused the LGL.

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Just FYI,
I have LGLL, and was getting reddish spots on my left for arm and it took weeks for the spots to go away. In talking to the pharmacist I asked him if Turmeric, could be taken with Cytoxan and he said there was no problem with that so I did my own research with my computer and found that Turmeric is a blood thinner so I stopped taking it and have no more reddish blood spots beneath my skin on my left for arm. If you have the same problem and you take supplements such as turmeric, fish oil, or garlic they are blood thinners and could be the cause of the problem.

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