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EBV Labs. Am I contagious, are results serious or am I crazy?
Hi everyone, I consulted with Functional Medicine NP because I’ve been sick for over 3 years and PCP has been no help. NP tested me for EBV and ran labs through Quest in March. These are my tests results which came back positive on 4 titers:
EBV Early Antigen D AB (IGG) 150 U/ml
EBV Viral Capsid AG VCA AB (IGM) 102 U/ml
EBV Viral Capsid AG VCA (IGG) 750 U/ml
EBV Nuclear AG (EBNA) AB (IGG) 600 U/ml
Functional NP was concerned about these results and directed me to see an Infectious Disease specialist.
The Infectious Disease doctor ran a PCR test which thankfully came back negative for CAEBV.
I asked ID if I was contagious and she said I wasn’t “at all". How is that possible since it appears I have an active infection by the Quest Labs results? Bloodwork consistency shows I’m fighting infection. ID has a copy of these labs. I’m so confused and ID has stopped responding to my questions. I’ve only asked a few.
My PCP is completely in the dark and of no help. Yesterday she diagnosed me as having CFS and suggested Remeron for depression. I know this medication causes fatigue so that didn’t make sense. She had just diagnosed me with CFS a minute before that. She then suggested I try Buspar instead.
I’ve been sick for over 3 years after contracting Lyme disease in 2020. This is another thing my doctors completely ignore. I had to stop working last year due to symptoms of very severe fatigue, brain fog, joint pain, sore throat, extreme knee pain, night seats, insomnia, headaches.....I can’t get my doctors to take me seriously. This has been awful and hard to believe.
Maybe someone here can help me understand if I am truly not contagious for starters as I am sometimes around people who are compromised and do not want to make anyone sick. I understand EBV spreads through saliva but want to be careful. Should I not worry about those bad test results? I understand most people carry the virus and sometimes it “reactivates”. Lyme seems to be what may have done that. I have not felt well since contacting it. I was treated with antibiotics at the time but symptoms still come and go.
Maybe I need to keep resting for the rest of my life? I have no life. Frustrated. I’ve been doing all the right things by eating healthy, taking many supplements like Lauracidine, Vitamin C and resting. I don’t know what more I can do. I have an appt with Functional Medicine in August but this has been VERY expensive and not sure she is able to help me since she sent me to ID.
Thank you in advance for any help and guidance and I do appreciate this forum for support. Love and peace to you all.
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You story sound like what I’m going through right now. Dr said I have Lyme disease but I never had a bite or mark of a tick. I’ve been sick for 2 months and getting worse. Went to infectious disease and they are doing bloodwork. My levels are very high on my mychart. I see ID doctor in few weeks. It’s hard not to google my results. ID doctor said I might be miss diagnosed with Lyme . I guess I’ll wait for answers. I also can’t work , I own my own business. Can we apply for disability until we find answers. I’m lost too. Hope u find answers soon
Hi, I wish you the best and hope you can get some answers. I still haven’t. Lyme and EBV are mystery diseases doctors don’t know much about. I’ve found myself on my own without many treatment options.
What I have received for treatment are Vit C infusions, taking Lauracidine and consults with Functional Medicine which I’ve had to pay for out of pocket. All very disappointng. I don’t have any more money to do this. Infectious disease and PCP both were not helpful at all. It’s a very strange place to be medically with no help.
I have a similar story. On my 3rd set of labs to see if my EBV reactivated again My EBV seems to reactivate when I get some other type of illness first or my stress levels are extremely high. Thankfully PCR test negative It looks like several people have had Lyme disease as well My infectious disease doctor disagreed with my Lyme lab work as well. I used IGeneX in CA They said that’s not a proper lab per ISDA I don’t understand if I’ve had Lyme disease, I’ve had it for years now so really too late to treat it but my functional medicine doctor treated it anyway with no results. also have Sjogren’s and Hashimoto’s my rheumatologist has no idea what to do. She said there’s something else going on beyond the auto immune. I don’t treat either of those with immuno suppressant given my reactivated EBV in the last couple years I feel for all of you, but we’re gonna “keep on keeping on. I hope God as the Ultimate Healer will help guide and comfort all of us