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Shingles and Postherpetic Neuralgia and Pain
Has anyone suffered from LONG lasting neuropathic pain as a result of Shingles, and what treatment do you use for the pain? My daughter had shingles at 21, a spinal cord stimulator inserted and removed, many trigger point injections, all of which may have contributed to the thoracic pain she has. She is now 34, and teaches yoga, but is still on a compound prescribed by a pain management Dr. in NYC what is basically Oxy. I am paying for this, since neither she nor her husband can afford it at around $500 a month. She could not find a physician in Fl. I know who would prescribe this medication after 10 years, thus the use of an out of state physician. I do not want to see her suffer, nor can I discuss much with her since we barely speak, but this expense, coupled with paying for asthma inhalers that are expensive is becoming more and more of a strain. Any thoughts for alternatives are appreciated.
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I have made two orders and received one. I would love to get a discount, but more importantly you need to get your credit.
I don't know how to get the discount at this point. I think the recommendation has to be done before ordering. Maybe the next time you make a new order. Most importantly, has it helped you? I'd like others to try if it works for you and no one thinks it is a scam.
I ordered the Liberty patches and the Freedom patches. I haven't received the Liberty patches and unfortunately, I get no relief from the other. I keep playing phone tag with the company. The Freedom patch is for muscular pain, which I have some, but my life is ruled by nerve damage.
The Liberty also helps me with some pain. I don't think thier customer service is the greatest. But, you should send back the patch that didn't help you as they offer the money back within 30 days if it doesn't, I think I'm lucky, it was my balance and the numbness in my feet it iimproved. They used to feel dead, now I don't notice them unless I try to drive, because I can't feel the brake pedal.
My biggest "pain" I'm dealing withnow in coastal California is from the floods. I have a flooded bedroom anad need my roof replaced.
PS. If nothing helps you an they don't talk to you, I suggest you have your credit card take off the charge.
My husband had help with the Vielight 810 with his Parkinson's dementia. I see red light therapy is being used for pain. Perhaps you should try one. They give you your money back if it doesn't work for you within 6 months, They were very helpful and customer service was great.
https://www.quietmindfdn.org/blog/vielight-impact-on-long-term-autoimmune-related-neuropathic-pain-and-colitis
In 2017, I had shingles on my head. It was so painful. All I could do was put ice packs on it and I think I lost about two days. Don’t really remember that much for those two days. Just felt like my scalp was on fire. At that time I did not have Neuropathy symptoms and they began in 2020. I was just wondering if anybody else could associate shingles with a PN? In addition, I had meningitis about 30 years ago and I’m curious about that as a cause too.
Hi @ssjohns, You will notice that we moved your post to an existing discussion on the same topic so that you can connect with @tikigod18, @gmaw4, @fmmartinez58, @raebaby and others to learn what they have shared. If you click the link below it will take you to the beginning of the discussion so that you can read what other members have shared.
--- Shingles and Postherpetic Neuralgia and Pain: https://connect.mayoclinic.org/discussion/shingles-and-neuropathic-pain/
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1 ReactionI am here for you. I am miserable and on year six. I have tried numerous treatments and meds. I am in bed all day everyday. I had about 12 or so shingles outbreaks. At around #6, I developed PHN. I feel hopeless. I just hired a part-time caregiver. My grown children help but it's not enough. I hurt 24/7.
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1 ReactionHello. I am on year eight of PHN. I have never heard of anyone actually getting better. I have tried numerous treatments, oils, creams, diets, surgeries, etc. I am desperate and all of my doctors are dead set on the opiates. They don't want to lose their licenses. I an miserable and am going to see another surgeon in three weeks. Is there anyone out there with suggestions beyond the normal scope (spinal cord stimulator, gabapentin, lyrica, etc.) I have tried all of them.