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Replies to "@km6 I'm not sure you will get too many responses here about Trelegy - it is..."
MAC & Bronchiectasis | Last Active: Dec 3 9:36pm | Replies (6)
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@km6 I'm not sure you will get too many responses here about Trelegy - it is most commonly used for COPD and severe asthma, and since it contains an ICS (inhaled corticosteroid), most Bronchiectasis patients are advised to it. The steroid is thought to lower ability to fight off infection.
I take Symbicort, which is similar but only contains two medications, and it actually improved my chest tightness, but didn't completely relieve it.
Are you still using albuterol before you neb saline and do airway clearance? That extra "shot" of bronchodilator can sometimes cause airway spasms. According to my pulmonologist, it may not be necessary if you are using long-acting inhaler like Trelegy.
Replies to "@km6 I'm not sure you will get too many responses here about Trelegy - it is..."
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Thank you. I have been on trelegy for a couple of years. My pulmonologist has basically tried all of the other inhalers. They struggle to figure out how to help me. I worry about the steroid, as I have very thin skin that tears easily. I'm sadly aware of the danger of steroids, in addition, I'm on prednisone two or three times a year for exacerbations. I do not have a definitive diagnosis of Mac, but it is suspected. I am getting ready to have cardiac testing to rule out cardiac involvement. I can tell my disease is progressing because of my breathing. I forced myself to walk every single day. I take care of my house and my dog and do everything I can. I alternate between frustration and fear.