1. < Polymyalgia Rheumatica (PMR)

Weaning off of all medicine - prednisone and methotrexate

Posted by rl24 @rl24, Sep 26 9:25am

I asked my Rheum about ending all medicine - what would happen from the inflammation. She expressed concern about the inflammation spreading to the cardio system causing problems with the vascular system. I have not been able to get past 7mgs of prednisone without a flare, so she has started me on methotrexate. I am so tired of taking medicines with such awful side effects. Frustrated. Any thoughts?

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rwerky | @rwerky | Nov 26 10:08pm
In reply to @mtr2601 "I have been longing to get off the meds for many months. Currently at 3.25mg Prednisone..." + (show)
@mtr2601

I have been longing to get off the meds for many months. Currently at 3.25mg Prednisone and 'stuck' also tried Methotrexate and couldn't tolerate it. On 300mg Plaquinil which helped me get from 7mg Pred to 3.25mg but doesn't seem to be helping anymore and may be causing dizziness. My GP is now suspecting the Plaquinil might be giving me cardiac side effects...feels like a no win situation sometimes. Is it better to take your chances with the background inflammation or roll the dice on the horrid side effects of medication. I know which way I'm leaning but as a former RN I am very sceptical about traditional medicine.

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I was diagnosed 2yr ago. I'm now down to 2.5 pred every other day and 8little methotrexate weekly. My osteoarthritis is worse. I'm skeptical of traditional medicine. That's what caught my eye in your post. I somehow bumped into a website about DMSO. I don't suppose you heard of it because medical schools won't touch it. I started using it in a creme form a week ago with huge benefit to my knee. It's a huge topic and worthy of being looked into. I wonder if it will enable me to quit the pred and meth. I certainly hope so but more importantly think I might avoid a knee replacement. It's that amazing.

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