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Anyone stop valcyte early?

Transplants | Last Active: Dec 4, 2024 | Replies (14)

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@jtjourney

I am 5 months post liver transplant. A month ago my WBC level was 1.48 and I had stopped taking Valcyte after the 90 day surgeon prescribed protocol. I was taken off Mycophenolate and put on prednisone. My WBC and all other blood work look great, however, today's blood draw detected CMV DNA, plasma at < 34.5. I have no idea what this mean. I have a mychart message in to my transplant coordinator. Also, I last saw the surgeon Sept 4 and transferred to hepatology and had my first appt. Oct. 29. The new hep blood draw orders did not include a CMR test as the previous orders from the surgeon until today. Thoughts?

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Replies to "I am 5 months post liver transplant. A month ago my WBC level was 1.48 and..."

Hi, @jtjourney. Welcome to Mayo Connect and Congratulations on your recent liver transplant!
I hope that you were able to enjoy the Thanksgiving Holiday with your new liver. I remember my 1st holiday after my transplant as being a celebration and a challenge.
I am a patient and I don't remember the blood work tht was ordered after my surgery. I am guessing that this was your post surgical visit when you were examined and released by the surgical team because of satisfactory healing. And are now fully under the care of the liver department. I think that of you have a question or concern about the difference in the requested blood labs, that you ask the hepatologist. It could be a simple, "Not necessary" at this time.

Here are some discussions by newly transplanted members.
-It's just one of those days: Share your transplant recovery tips
https://connect.mayoclinic.org/discussion/its-just-one-of-those-days/
-18 months post-transplant kidney + liver
https://connect.mayoclinic.org/discussion/18-months-post-trans-kidney-liver/
.
Will you be seeing the liver doctor soon? If you are at Mayo you can send a note thru the patient to your nurse coordinator or follow the protocol of your transplant center with the question. There is no need for you to be worrying about it. How is your recovery coming along?

@jtjourney, how are you doing? What did you learn from the transplant coordinator about the blood draw results? Any update?