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Autoimmune diagnosis issues -Hashimotos Thyroiditis with normal TSH?
Hi,
I have been getting different diagnosis and instructions with meds/vitamins with no resolution. It started over 1.5 years ago, with extreme fatigue, weight gain, nausea, headaches, lack of energy, and brain fog. First they claimed it was all from Covid and anxiety. Then I was told maybe it’s hormonal.
After multiple tests and physicians, they said all they can find is Hashimotos Thyroiditis, which they do not treat until I have an abnormal TSH. My antibodies are extremely high, but that’s all they can find. I don’t know what else to do. Any suggestions? Thanks.
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Do you know that you can have Hashimoto’s without Hypothyroidism or Hyperthyroidism. I was diagnosed with both Hashimoto’s and Hypothyroidism in November of 2022. Contracted Covid in December of 2022 and lost my taste and smell. Never knew I had either of them until after having 18” of my colon removed due to severe diverticulitis and started gaining a lot of weight when I was watching my diet…had my Thyroid Levels checked and low and behold, high Hashimoto’s numbers at almost 600 when they’re suppose to be 0! I started on Synthroid and Cytomel initially and gradually weened off Cytomel as I became very jittery inside and also came down to a lower dose of Synthroid which is 100 mcg instead of 112. I am feeling better and have lost the weight.
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2 ReactionsCorrect! People think low TSH means HYPO and vice versa.
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1 ReactionYes you can have the anti-thyroid antibodies but be eu thyroid meaning your hormone levels are normal so neither hypo or hyper at that point. That typically occurs early in the disease and eventually changes over the course of months or years
I'm so sorry. Me too. But, my thyroid is very very hyper with Hasimotos. I'm so tired. I went to 2 hospitals yesterday trying to get admitted to a psych ward. I want to die. They don't understand how sick I feel. I wanna die and nobody can take that right from me. I shouldn't have to live like a crazy animal. I'm sorry
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1 ReactionI think they'll follow their Endo parameters and let me die
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1 ReactionI am unable to edit the above, but just realized I have a typo.
The above should read:
The TSH usually goes from normal to high TSH (HYPO) to low TSH (HYPER).
As I mentioned in another post here, you probably have Hashimoto’s Thyroiditis. Your antibodies are high due to Hashimoto’s. My levels measured at almost 600 at one point and they’re suppose to be 0! I was off balance, felt like I was on a boat most of the time, walking crooked and easily felt off balance. I read a book called Root Cause (Hashimoto’s Thyroiditis) written by Izabella Wentz, PharmD, FASCP that was an eye opener! I suggest you order it and read it. I learned so much from it and feel like I have healed myself. I always knew that when I ate certain foods I would become bloated and now I know why, I have a food sensitivity to things like gluten, dairy and soy so I have eliminated all three. I also had 18” of my colon removed due to severe diverticulitis and found that after the surgery, my colon was very sensitive to many foods. I had a food sensitivity test done by a doctor and have several, which I now don’t eat any longer or eat sparingly. It’s a choice I have made for better health. I wish you so much luck and a healthy journey! Get the book!