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Is there anything to help stop or slow progression of MGUS?

Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (69)
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@1oldsoul

A year ago he told me that he didn’t think the MGUS would progress to Waldenstrom’s based off of normal light chains, IGM which didn’t seem very high to him and other normal blood work. He now said he wants a “baseline” but I am more concerned about the 2 full body CT scans more so than the bone biopsy because of the fact that I just had 4 CT scans in the past 2 years (other diagnoses) and I’m concerned about so much radiation when it seems other doctors want to watch and wait. I am going to contact him next month and see if he will agree to just do the bone biopsy first.

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Lori, Volunteer Mentor | @loribmt | 4 hours ago

Having the BMB before all the imaging sounds like a reasonable plan. The biopsy goes to the heart of the blood manufacturing site…the marrow. So it is a primary tool in diagnosing blood disorders. You could see what the results are from there and then talk to your hematologist oncologist about followup scans.

If it helps ease your concern, from what I’ve learned is that WBLDCT (Whole Body,Low Dose, CT scans) used for whole body imaging for MM patients, has much less radiation than regular CTs. And MRIs do not use radiation to acquire imaging.
Were those the two scans your doctor mentioned?

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