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Is there anything to help stop or slow progression of MGUS?
Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (69)Comment receiving replies
Hi @1oldsoul, I read through a few of your earlier posts just so I could get a better understanding. You were diagnosed with MGUS a couple of years ago and your doctor suggested just to watch and wait. Which is very standard practice. For some patients, they never progress beyond the surveillance stage.
It looks as though followup blood results are showing a small upward trend in some of your numbers. It seems like our doctor is being thorough and recommending a few more tests run to see if there are any changes in your bone marrow and its ability to produce healthy blood cells. This would be helpful if there has been any possible progression to MM and as a baseline for future results for comparison.
What is your hesitation with having the tests run?
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A year ago he told me that he didn’t think the MGUS would progress to Waldenstrom’s based off of normal light chains, IGM which didn’t seem very high to him and other normal blood work. He now said he wants a “baseline” but I am more concerned about the 2 full body CT scans more so than the bone biopsy because of the fact that I just had 4 CT scans in the past 2 years (other diagnoses) and I’m concerned about so much radiation when it seems other doctors want to watch and wait. I am going to contact him next month and see if he will agree to just do the bone biopsy first.